Lupus Blister: πŸ‘£πŸ‘£πŸ‘£πŸ‘£πŸ‘£πŸ‘£πŸ‘£πŸ‘£πŸ‘£πŸ‘£πŸ‘£πŸ‘£πŸ‘£πŸ‘£ I am... - LUPUS UK

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Lupus Blister

Tiras profile image
Tiras
β€’27 Replies

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I am not sure what is going on but, this blister started last Saturday. It has gotten larger each day. I have already seen the dermatologist and they went behind and beside and went under and injected under it with medication ( I assume a Steroid).

It has quadruple in size I will have to go back to the doctor Monday if it does not improve.

The bright side of this is, my cousin is coming up from south Alabam (about a 4 hour drive). Her husban is a doctor so I'll get his opinion.

He and I are going fishing tomorrow. Then fish fry on Saturday night. (If we don't catch any fish I already have some in the freezer just in case).

I hope everyone has a good weekend!

πŸ‘£TirasπŸ‘£

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Tiras profile image
Tiras
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27 Replies
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Lorelei profile image
Lorelei

Tiras,

That injection sounds like it might have been painful. I hope it wasn't!

Good luck fishing tomorrow!

Lorelei

Tiras profile image
Tirasβ€’ in reply toLorelei

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Hi Lorelei;

It was a little painful but, I have lost a lot of feeling in my foot well actually feet, and as we can see it didn't work.

We had a good day on the lake yesterday, we did catch some fresh fish to add to the frozen fish.

Hope your weekend went well!

πŸ‘£TirasπŸ‘£

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The Barefoot Gardener

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Cann profile image
Cannβ€’ in reply toTiras

I have had blisters like this on my feet and toes, but they eventually burst and I then cut the loose skin off when new has grown underneath.

Tiras profile image
Tirasβ€’ in reply toCann

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Hi Cann;

Thanks for your reply and your experience with an issue like this. I have had lupus blister come up but, they stayed the same size. This one has gotten larger each day. I have never had anything like this before!

I have had a rash/blister that has been on my right foot for 2 years that comes and goes, and because of this I have not been able to wear shoes. I have been barefoot for 2 years. Actually now going barefoot feels more natural. Yes, I go everywhere and do everything barefoot. Fortunately I live in the southeastern part of the U.S. We have long summers here and very mild winters, so, going barefoot year round is not an issue.

Thanks again and when this thing burst, I will try your advice.

I hope all is well with you

πŸ‘£TirasπŸ‘£

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The Barefoot Gardener

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Cann profile image
Cannβ€’ in reply toTiras

Good you can go barefoot - not so here in England - too cold for one thing. Hope it bursts for you and heals soon.

Tiras profile image
Tirasβ€’ in reply toCann

πŸ‘£πŸ‘£πŸ‘£πŸ‘£πŸ‘£πŸ‘£

Hi Cann;

I just made a new post about this. I went to the dermatologist yesterday (gottago back today for a recheck).

I live in the southeastern part of the U.S. We have long summers here and mild winters so, going barefoot here is not a big issue weather wise. Last Christmas Day it was in the 80's (degrees Fahrenheit) here. Usually no frost until late November. We have not had any snow here in 5 or 6 years. When we do it only last for a day then it's gone.

Hope all is well with you!

πŸ‘£TirasπŸ‘£

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πŸ‘£The Barefoot GardenerπŸ‘£

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Cann profile image
Cannβ€’ in reply toTiras

Sounds a really nice place to live!

Tiras profile image
Tirasβ€’ in reply toCann

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Cann;

I'll have to agree it is a nice climate to live in!

πŸ‘£TirasπŸ‘£

ExtremeDuvetDaze profile image
ExtremeDuvetDaze

Ouch that looks nasty Tiras 😞 . I really hope it goes down soon without any further problems and you can enjoy your fishing trip and your family this weekend , The fishing sounds very relaxingπŸ™‚

It's handy to have a Dr in the family πŸ˜€πŸ‘πŸΌ

Look after yourself and enjoy.

Diane🌺Xx

Tiras profile image
Tirasβ€’ in reply toExtremeDuvetDaze

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Hi Dane;

Thanks for your concern But, it has not gone down and is still getting larger!

We did have a good day with the family, and we caught some fresh fish to go with the frozen fish for the fish fry last night.

My cousin the doctor did look at it, and as long as it is clear it is not infected, and it does not get burst, it is still sterile under the skin. However if it continues to enlarge, I will need to see my dermatologist. Looks like I may be going to see dermatologist tomorrow at the current rate!

Hope you had a good weekend!

Tiras

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The Barefoot Gardener

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ExtremeDuvetDaze profile image
ExtremeDuvetDazeβ€’ in reply toTiras

Good luck with the dermatologist and hope it stays clean no infection and that it settles really really soon.

Enjoy the rest of your family weekend Tiras.

Diane🌺🐠 🐟🌸x

Tiras profile image
Tirasβ€’ in reply toExtremeDuvetDaze

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Diane;

Thank you and, yes we had a great family weekend!

πŸ‘£TirasπŸ‘£

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The Barefoot Gardener

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dar58 profile image
dar58

wow, i have one right now, had it for a couple days now, It did burst last night. Dr. felt around, its in my calf, he feels more under the skin. I am in rehab for a severe MS attack and now the lupus is doing ts thing. Whats next? I have APS and Becets too....These thngs scare the heck out of me.

Tiras profile image
Tirasβ€’ in reply todar58

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Hi Dar58

I hope you do ok. I do hope that after bursting you don't have any issues. I wish you the best on your other health issues also. I do know how you feel.

Mine blister has been on my foot for a week, it has not burst and it is still getting larger.

Hope you have had a great weekend!

πŸ‘£TirasπŸ‘£

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The Barefoot Gardener

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creaky profile image
creaky

Oh Tiras, sorry to read take your blister has not resolved, sounds like you need to speak to dermatology!

Meanwhile enjoy your fishing, good to have backup fish 😊

Tiras profile image
Tirasβ€’ in reply tocreaky

Hi Creaky;

Thanks, but, The blister is still getting larger. I am planning on going back to see my dermatologist tomorrow again for this blister.

We did have a good day on the lake, we caught some fresh fish to add to the frozen fish for the fish fry last night.

Wishing you the best!

πŸ‘£TirasπŸ‘£

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The Barefoot Gardener

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EOLHPC profile image
EOLHPC

Am SO GLAD you're riding this awful blister with your wonderful "can do & will do" good spirits. You're being proactive re staying close with your doctors on this, meanwhile making the most of life...YOU INSPIRE ME ‼️

Happy fishing, dear BFG πŸ‘£πŸ‘£πŸ‘£πŸ‘£πŸ‘¬πŸ›₯🐟

please let us know what your cousin's dr husband says...and please continue to keep us posted as this blister problem plays out

πŸ€πŸ€πŸ€πŸ€ coco

Tiras profile image
Tirasβ€’ in reply toEOLHPC

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Hi Coco:

Thank you, but the blister is continuing to get larger. My cousin the doctor did look at it. He said that the fluid is still clear so it is not infected. And as long as it does not burst it is ok however, he did tell me I need to go back to my dermatologist. I guess that is what I will be doing tomorrow.

We have had a good weekend thus far. We did catch some fresh fish to go with the frozen fish and had a great fish fry last night!

Hope the rest of your weekend goes great!

πŸ‘£TirasπŸ‘£

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The Barefoot Gardener

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EOLHPC profile image
EOLHPCβ€’ in reply toTiras

πŸ‘πŸ‘πŸ‘πŸ‘πŸ‘πŸ‘πŸ‘πŸ‘πŸ€πŸ€πŸ€πŸ€

noonoo57 profile image
noonoo57

Wow that's looks weird, it definitely a blister is it, I had something similar on the side of my foot but it was hard, is it spongy when you touch it, as if it's filled with pus. Be careful Tiras not to knock it when you are out on the boat, saying that enjoy fishing as I know you will and knowing you, you will forget about it and enjoy yourself.

Happy Fishing. 🎣🐟🐟🐟🐟🐟🐟🐟🎣

Love Nicola. XxX

Tiras profile image
Tirasβ€’ in reply tonoonoo57

Hi Nicola;

Thank You, yes it is definitely a blister it has water under the skin like a blister. It just keeps getting larger daily. I will have to go back to my dermatologist tomorrow.

We did have a good day yesterday, and we caught fresh fish to go with our other fish for the fish fry last night!

Have a great rest of your weekend!

πŸ‘£TirasπŸ‘£

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The Barefoot Gardener

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Purpletop profile image
Purpletop

This looks like bullous SLE. It usually appears on skin that was exposed to sun - usually neck or face or arms but as you walk barefoot, it is conceivable that's what caused this. Get it checked as soon as you can, it's not good to have your skin blistering (basically the upper layer coming off), it can spread. Steroids don't work for this, there's a specific drug, dapsone, that's been successful and also methotrexate.

Tiras profile image
Tirasβ€’ in reply toPurpletop

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Hi Purpletop;

I'm not sure what it is exactly? I have not been in the sun any more than usual, and use tons of sunscreen when I am. I have already been to my dermatologist once this past week. They used a needle went under it in 2 places and injected medication. As you can see that did work. I am planning on going back to the dermatologist tomorrow.

My cousin was up for a visit this week end, her husband is a doctor. He looked at it and said as long as the fluid is clear in the blister there is no infection. However he did say that I need to let the dermatologist see it as soon as possible.

I already take methotrexate and have been taking it for 3 plus years.

I have never had a blister to spread like this, but, this is lupus so nothing is unusual.

Thanks for the information. I will keep the name of the medication and ask the doctor tomorrow.

I hope you had a good weekend.

Thanks again!

πŸ‘£TirasπŸ‘£

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The Barefoot Gardener

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EOLHPC profile image
EOLHPC

Purpletop has replied thinking the same way I've been thinking since you first posts re this particular blister. I too have bullous problems. I'd been imagining your medics had been talking to you about bullous aspects of lupus....have they?

πŸ€πŸ€πŸ€πŸ€ coco

PS here is a link discussing bullous SLE & mentioning Dapsone (eg see the grey Intrduction box)

ncbi.nlm.nih.gov/pmc/articl...

Tiras profile image
Tiras

πŸ‘£πŸ‘£πŸ‘£πŸ‘£πŸ‘£πŸ‘£πŸ‘£πŸ‘£πŸ‘£πŸ‘£πŸ‘£πŸ‘£πŸ‘£. Update on blister

I went to the dermatologist today, she uses a scalpel to open and drain the blister. Gave me a topical antibiotic and a soke, to be done 3 times a day.

Now for a long healing process, because as we know we who have lupus everything take 2 to 3 times longer to heal.

OH, THE EVERYDAY LIFE WITH LUPUS!

πŸ‘£TirasπŸ‘£

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πŸ‘£The Barefoot GardenerπŸ‘£

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β€’ in reply toTiras

Gosh Tiras it looks so sore I'm glad it was drained - hope no infections now and you are fully recovered to barefoot garden again in no time x

Tiras profile image
Tirasβ€’ in reply to

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They have a compression bandage on it now, I go back tomorrow morning to remove the bandage and for a follow up. If all is well bandage will not have to go back on. I will have to soke it in a solution 2 or 3 times a day. Then apply the antibiotic cream.

Wow what we have to go through. I know there are others with different medical issues than us who go through a lot more than we do.

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