Updates and more stuff

[JennaShi]

Hi everyone,

I hope you're all doing well these days. It's surely pollen season lol but the flowers are beautiful. I find myself being drawn to the plant section in Home Depot as we frequently visit there due to house projects. Well I coaxed my husband to let us get another dog, he is absolutely adorable! He's a 10 month old Labrador Pitbull (huge and going to get slightly bigger) but the friendliest sweetest guy in the world and lately I've been his world. I'm still heartbroken over losing my second daughter; I guess I can no longer call her that but I do, and think about her often.

I'm almost done with my first class and have managed to do alright with some help and have started my second class. Both teachers are so nice and I'm grateful for their and my husband's help.

I've bee seeing a therapist, and that's been going alright and will be seeing another Rheumatologist for different options for pain as well as been going to Physical Therapy.

I seem to have another familiar problem come up and am not sure if it's nerve related. When I do specific movements such as a side lying leg raise and clam my right ankle in particular gets this radiating pain and weakness that gets worse with more movement. It starts in the top middle section of my ankle and moves up my leg and down my ankle. I thought it may be Anterior Ankle impingement but my PT says that can be pretty rare. The other issue that has been happening is my neuropathy gets worse in both legs afterwards. It feels like my feet have a million bugs crawling on them, going up my calf.

@Dr. Miller, you were right about the Costochondritis (I think that's how you spell it), I've seen a bone Dr. and she and my PT suspect this is what's going on with my rib and the bump on my chest. I was also told I have longer than normal rib cage.

I still continue to get the sliver like blisters in m finger nails and only a couple sores on my upper lip around the gum area, but considering all the stress that's happened I'm grateful that is all that's happening beside my Fibromyalgia acting up. The two Rheumys I see have figured out that it's the fibro and not Lupus. I still feel like an imposter because I'm not far along in Lupus but I'm grateful. I do feel my brain is affected in some way as things aren't right but I'm not sure if this is Lupus, Fibro, PTSD, or something else. Will be seeing my Neuro soon. Until then, lots of notes to be made and keep chugging along with classes until I graduate. I'm so close with my associates and have decided to add Graphic Design certificate. It's unbelievably hard at times to figure out but so much better to try and accomplish something than sit and sulk because things don't work right or thinking about the daily pain. I did file for SSI, and will see what they say, I know I qualify, but it would be nice ultimately to gain some extra income to help with all the medical finances and ultimately get my degree to work. I'm not sure who is going to hire mw in my state but, I can produce more art and that is what I'd like to do and show it can be done.

[KayHimm]

Jenna -

Lots of struggles. I admire how you hold up and still find the heart to get a new dog to love.

You are not an imposter! These illnesses are always evolving even in one with a clear diagnosis. What exactly have the rheumatologists said? Are they thinking autoimmune disease with fibromyalgia?

Good for you for continuing your classes.

Xx k

[JennaShi in reply to KayHimm]

Thank you Kay, I couldn’t find my password and the google thing wasn’t working. I was able to figure out the Google thing today to get it.

Yes, Autoimmune with Fibromyalgia. I haven’t asked about the ankle thing yet but will be seeing my neuro on the 1st of June as well as fibromyalgia Rheumy so hopefully they can figure something out.