A little update from my post the other day I was so anxious about seeing this new rheumatologist! I took my notes which he scanned over (not sure he read) but I used them to help me explain everything he confirmed it is lupus and diagnosed the Raynaud’s - he was mentioning maybe a bit of fibromyalgia too but he quickly went off the subject but then said hmm lots of symptoms maybe lupus/UCTD he wants to see how my symptoms progress.
I was prescribed methotrexate which I will start when the doctor’s processed it, he also said I have to take a folic acid tablet with it (not sure why? If anyone knows could they let me know) and prescribed nifedipine for the Raynaud’s. He did a physical examination of my hips and thinks the joint range is good but this was very painful he’s booking me in for an MRI to rule out I think he said hip dysplasia my notes say AVA but he thinks it’s probably bursitis, they will scan both sides...
I can say honestly I am very overwhelmed with the appointment I think it’s going to take some time to sink in what happened especially with the lead up to everything not knowing but I will see him in 6 months time but in 3 months I’ll see the specialist nurse. They also took a urine sample for kidney tests due to my pain there so should get something back from that. He said my ANA was near 400 which is a shock as in February it was at approx 140 but in November 2019 it was 360... not sure what’s happening there but I hope now the treatment plan helps a lot more and there isn’t as much struggling.
Thank you for reading this far hope everyone is as okay as they can be - sending love to you all!