A Message and update from Stormy: I thought I’d... - LUPUS UK

LUPUS UK

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A Message and update from Stormy

Spotty-ewe profile image
Spotty-ewe
β€’33 Replies

I thought I’d pass on Stormy’s update and response to everybody’s lovely and informative messages to her. Thanks to all who responded to my post.πŸ‘πŸ»πŸ‘πŸ»

β€œWhat a blessing to read all those joyful loving posts, and replies. The information is wonderful.. I have to ware an exterior monitor for 30 days. Then have the inserted heart monitor placed. YUK..Meg is correct, so the Doctors can catch the event, what it is coming from, and ablaid it, again in the future. For now, I sit, in pains, and await. I journal everything I do, and all my symptoms. I had just seen my GP follow-up, you know what he said, well, you are getting older. Now, I was so put off, what kind of answer was that. He is useless. But, my cardiologist, she is fantastic, and listens to all my symptoms, and such. I have a GI appointment Wednesday am, for a motility disorder they found, I do not know much of this either, and I sure do not understand how it is connected to my heart, but I guess I will find out. Please tell everyone I am so humbled, and so very comforted by all of them on the forum. What a blessed place it truly is. My left side freezes up, gets so tight right threw the rib cage, and down the shoulder, arm to fingers. So I am going to rest, and ready for tomorrow. I send all my prayers, bunches of Love, and blessings with smiles”.

This is such a supportive and caring site. We are all friends here and at times we need a little help from our friends, just as you will see in the picture above.πŸ˜‚

Thanks again for all your lovely messages which you can see have helped Stormy enormously. πŸ₯°

33 Replies
β€’

Blessings to you both. EJ πŸ€—β™₯️πŸ₯°πŸ™

Spotty-ewe profile image
Spotty-ewe in reply to honeybug

Thanks Honeybug. Love and hugs back to you. πŸ’–πŸ€—πŸ˜˜x

Just love ❀️ this pic - hugs πŸ€— to you both xx

Spotty-ewe profile image
Spotty-ewe in reply to svfarmer

I could do with a helper like that! πŸ˜‚πŸ˜‚ Hugs to you too lovely SV πŸ€—πŸ˜˜x

Love the pic πŸ‘ thanks potty πŸ™ glad all the messages and best wishes have helped stormy πŸ™

πŸ˜˜πŸ€—

stiff19 profile image
stiff19 in reply to stiff19

Oops spotty πŸ˜‚πŸ˜‚πŸ˜‚πŸ˜‚πŸ™ˆπŸ€”xx

Spotty-ewe profile image
Spotty-ewe in reply to stiff19

You obviously have me sussed out Stiff!πŸ˜‚ Potty was spot on! πŸ˜‚πŸ€£ πŸ’–πŸ€—πŸ˜˜x

stiff19 profile image
stiff19 in reply to Spotty-ewe

Soz spotty it was funny to read though , glad you see the funny side πŸ˜‚πŸ˜‚πŸ˜‚πŸ€ͺ I think I’m definately heading that way πŸ˜‚πŸ˜‚πŸ˜˜πŸ€—β€οΈ

Spotty-ewe profile image
Spotty-ewe in reply to stiff19

A pair of cracked pots together eh? πŸ˜‚πŸ€£πŸ€—πŸ˜˜πŸ’–x

stiff19 profile image
stiff19 in reply to Spotty-ewe

πŸ˜‚πŸ˜‚ πŸ‘ it’s being crackpots that keeps us sane πŸ€ͺπŸ˜‚πŸ˜‚πŸ˜‚πŸ˜˜πŸ€—πŸ’•xx

Spotty-ewe profile image
Spotty-ewe in reply to stiff19

You are right there! πŸ₯ΈπŸ₯΄πŸ˜‚πŸ˜‚πŸ€£πŸ€£ 😘xx

Potty Spotty it is then!! πŸ€—πŸ˜‰πŸ™ŒπŸ˜ΉπŸŒˆπŸ˜½πŸ˜½Xx

😳πŸ₯ΈπŸ€ͺπŸ˜œπŸ˜‚πŸ˜‚πŸ‘πŸ»xx

Krazykat26 profile image
Krazykat26 in reply to stiff19

πŸ˜ΉπŸ˜ΉπŸ™Œ thanks for the typo giggle Stiff!! Potty Spotty sounds good I reckon!! 🌈😽😽Xx

stiff19 profile image
stiff19 in reply to Krazykat26

πŸ˜‚πŸ˜‚ it does go well doesn’t it πŸ˜‚ I really should check before hitting reply but a good giggle and from spotty too πŸ˜‚πŸ˜‚ πŸ˜…πŸ™ŒπŸ»πŸ˜˜πŸ€—πŸŒˆx

Spotty-ewe profile image
Spotty-ewe in reply to stiff19

Yes, it certainly did and I know she feels bad she can’t reply to everybody which is why I thought I’d do the update. I’m sure this one will lift her spirits too knowing her friends have now been told how much she appreciates their thoughts, prayers, and any information they can provide. πŸ‘πŸ»πŸ‘πŸ»

stiff19 profile image
stiff19 in reply to Spotty-ewe

stormy alwAys thinks of other people through her own problems, and so supportive and so deserving of the love and support she’s receiving. It will lift her spirits for sure πŸ‘πŸ˜˜πŸ€—

Spotty-ewe profile image
Spotty-ewe in reply to stiff19

So very true Stiff. πŸ€—πŸ˜˜πŸ’–x

Bless her, she is always so full of humour and upbeat despite all the health problems. Good luck Stormy, you are in my thoughts and prayers lupus warrior . Xxx

Thanks Cecily. Yes, despite going through so much and having so much to worry about she always thinks of others and keeps upbeat about it all. She’s a lovely amazing person and I’m glad we are all able to support her when she needs us most. πŸ‘πŸ»I hope you are doing okay Cecily. Are you back to the treadmill these days? Take care. Hugs, πŸ€—πŸ˜˜x

Thank you Spotty. No sadly my asthma which was completely stable for eleven years on Hydroxychloroquine is now brittle again. I have just started my fourth course of 80 mg prednisalone. I am on three inhalers and nebulisers. Desperately trying to prevent a hospital admission and waiting for an urgent respiratory appointment. Once I am stable I will be back on that treadmill xxx

So sorry to hear that Cecily. Please take care and I hope you get that all important respiratory appointment pronto! Thinking of you. πŸ€—πŸ˜˜

Thank you so much lovely xxx

πŸ’–to you Spotty for being such a good friend and as always πŸ’–πŸŒΉβœ¨πŸ™πŸΌ to Stormy!

DπŸƒπŸ½β€β™€οΈ

That made it sound like I was preferring one over the other. I just meant that I wanted to send an extra dose/portion to Stormy πŸ˜”πŸ˜›

I knew exactly what you meant. πŸ‘πŸ» πŸ˜†πŸ€—πŸ˜˜xx

Thank you D that’s very kind of you to say so, and I’m sure Stormy will appreciate your prayers and kind thoughts. πŸ’, πŸ€—, 😘 and πŸ™πŸ» back to you. Xx

It’s great that Stormy is well enough to write to us. Sending love, hugs and best wishes. πŸ’β€οΈπŸ€ž

Spotty-ewe profile image
Spotty-ewe in reply to Barbara17

Yes, it is great but she tires easily. Hopefully the monitors and eventually ablation will sort out her trouble. πŸ™πŸ» Take care. πŸ€—πŸ˜˜x

LOL ... holiday decorations next

Sending big hugs, Stormy 😘

......and also to Spotty xxx

Keep looking forward to brighter skies Stormy πŸ’—

Still thinking of u stormy sunshine πŸ€—πŸ’πŸ€—πŸ’πŸŒˆπŸ˜½πŸ˜½xx

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