It has now been 15 days since this headache started. I have been on Prednisone for 8 days. Tomorrow is my last scheduled day of 20mg. (60mgx3days, 40x3days, 20mgx3 days). Headache is definitely better but still here. General systemic symptoms receded with higher dose and my body really appreciated the increased prednisone. The blurred vision in my right eye has stayed the same— neither better or worse. My blood BP has returned to baseline. 👏🏼. The sternal “ick” is gone so if I could just get rid of the headache…
•ESR/sed rate 15 (nl 0-30, 11 last month- mine is never raised. 15 is the highest it’s ever been for context)
•CRP <2.9 (nl <2.9)
•MRI showed one FLAIR hyperintensity potentially caused by sequele of infection of inflammation but when compared to my other scan it might be similar or same. Of visualized portions orbits appear normal and intact ( radiologist speak for— your crown work is interfering with my ability to see your anatomy)
So, the working theories according to the PA notes and talking to the Wizard…
Reaction to Pfizer BioNTech vaccine
GCA ((less likely because my labs and imaging was neg but didn’t have a temporal biopsy)
The headache doesn’t feel like a migraine. It doesn’t respond to Triptans. It’s just awful. It completely wrecks havoc with my SPS and causes whole body spasms. It’s a frightening thing! I’m not going to lie. It’s exhausting to fight your body with the constant “ push me, pull me”.
And while I was on the phone with the Wizard’s office, they had to change my regular appointment and push it out another 2 weeks because he will be out that week. I’m probably driving him to drink 🍺 And he’s scheduling his bender now!