Help with discoid lupus

[Racingmurphy-1985]

Hi there i have DSL i was taking hydroxchlorquinine for a while which helped started with the praqu and then chemist gave me quinorac which i dont believe was as effective . Then I wasn’t getting better with it therefore i was put on Mepacrine . I had an adverse reaction and y whole body flared up with a itchy rash and blistered hands and feet like they had been in a fire . I’m now tying the quinorac again but still struggling . Doctors thinking of putting me on mepafexate now and I’m really concerned because its a steroid . Anyone got any other suggestions please .

[Nelly10]

Hello! Sorry you are going through these painful skin issues. I too have discoid lupus and suffered trial and error for a while. At the moment my skin is behaving although now with summer I have noticed it is beginning to have that burning feeling even though I live constantly with high protection and hats etc. My dermatologist was (she has just left - so gutted she was very helpful and would even call me at home sometimes - and not private may I add!) I take one of hydrochloroquina 200mg during Autumn/Winter then she raised it to 2 half way through Spring and throughout Summer. Also some creams for when it was becoming sore. Hope you find a solution soon. Yes!! Stress is not good at all for us even more so - I do Mindfulness 2 to 3 times through the week to keep me grounded!