"A Year Since Lockdown" Online Survey - NOW CLOSED

[Paul_Howard]

***THIS SURVEY IS NOW CLOSED*** Thank you so much to everyone who took the time to complete it and share your views and experiences.

It is one year since the first coronavirus national lockdown was introduced in the UK. We are supporting Cambridge University as they research to better understand how people with autoimmune rheumatic diseases, like lupus, have coped over the past year.

We would like to learn more about how you have coped, changes to your healthcare and your views on telephone appointments etc. We’re also interested in the impact of online peer support groups like the LUPUS UK HealthUnlocked Community Forum.

This study has been requested by rheumatologists and policy makers to help plan changes in care, policies and understand the patient-views, so is a great chance to get your voices heard!

The lead researcher, MelanieSloan , and several of the research team have lupus or another autoimmune rheumatic disease, so will be very sympathetic to any challenges. Please read the Patient Information Sheet for more information at lupusuk.org.uk/wp-content/u...

Contact Melanie if you have any questions on [e-mail]

The survey is open to everyone over 18 and from any country if you have one of the disease types listed on the information sheet or are on the diagnostic journey.​

Thank you!

GO TO SURVEY - bit.ly/CovidCare2021

NOTE: For anyone in the LISTEN study, you will recently have completed a very similar questionnaire about COVID-19 and peer support. You are welcome to be in this larger study too and complete the survey but many of the questions are the same/similar, although some are new.

[MelanieSloan]

Hello, thanks so much to everyone who has already completed this survey.

We have had a huge response (well over 1000 surveys already)!

We are closing the survey this SUNDAY (28th) at midnight UK time so if you want to be part of this please complete it before the end of this weekend.

It is certainly going to make a difference to doctors and policy-makers understanding about the challenges faced and taking patient views and experiences into consideration.

Thank you all

[svfarmer]

Thankyou - done

[Cathyan]

Thanks Paul and Melanie. Done.

[buzzards]

Thanks Paul - completed.