Lupus & COVID-19 Vaccination - UPDATED 03/02/2021 - LUPUS UK

LUPUS UK

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Lupus & COVID-19 Vaccination - UPDATED 03/02/2021

Paul_Howard
Paul_HowardAdministrator

Hi everyone,

We have updated our information and guidance about lupus and COVID19 vaccination: lupusuk.org.uk/covid19-vacc...

The latest update has added:

• Guidance for people experiencing a lupus flare

• Guidance for people due to start immunosuppressive therapy

• Guidance for people on anticoagulation therapy

• Expanded information about vaccine safety

• Updated guidance for people with a history of severe allergic reaction

I want to add that it is great to see so many people within this community having their first vaccine dose and sharing their experiences for others. Thank you all for sharing. I understand that some people have strong views about the vaccination rollout and I'd like to remind everyone to ensure they keep discussions polite, respectful and supportive.

I am monitoring the forum for comments/posts that are inaccurate/misleading and will take steps to remove them. Please bear in mind that we are only a small team, currently under increased pressure. You can help us a lot by using the 'report' function to flag any concerning comments to us.

9 Replies

Thanks for sharing this info, I’m very pleased to say that I had mine on Sunday and apart from a sore arm for two days I’ve not had any other side effects so far 🤞. Diane 🌺

I had mine yesterday and same - bit achy this morning and otherwise fine!

Thank you so much for the update - very informative. I’m having my first dose on Saturday, so am a bit anxious, but not feeling as bad after reading the report. Thank you -Sue

Thanks for posting this Paul - really informative, especially the link to The Green Book, stacks of useful stuff in there 👍

Does anyone know what the advice is for shielding children with Lupus and the vaccine? Thank you

Paul_Howard
Paul_HowardAdministrator in reply to Jodipat77

Hi Jodipat77,

The vaccines being used in the UK are not currently approved for use in children. The Pfizer/BioNTech vaccine is for 16+ and the Oxford/AstraZeneca and Moderna vaccines are for 18+. I understand that they are now being trialled in children, but I don't know when they may be approved for use.

Most children who were previously advised to shield are no longer considered to be clinically extremely vulnerable. Your child's doctor should have been in touch to advise you about appropriate precautions last year - lupusuk.org.uk/coronavirus/

Hi im new here, I’ve been trying to get some clarity on when I will receive the COVID vaccine- I thought I’d be in group six but after a chat with the receptionist at my gp surgery I was told I’m not on the list for group six- she was surprised by this and is going to look in to. I’ve seen from other posts there is a lot of confusion with some getting the vaccine (when on hydroxychloroqine only) and others being told no by their gp. I wondered if you knew anything more concrete. Thankyou

Paul_Howard
Paul_HowardAdministrator in reply to Wiley1

Hi Wiley1. If you have SLE, you should be in group 6 at least. Your GP should be able to add you to the group if you have been miscategorised.

Wiley1
Wiley1 in reply to Paul_Howard

Hi thank you so much for your reply. It turned out I was miscategorised and am now due to get my jab next Wednesday my gp also arranged for my (healthy) husband to be vaccinated at the same time as he felt this would be added protection for me (I have SLE and APS). This was a big relief and hopefully everyone else who’s had the same problem will be able to get theirs too- it’s definitely worth contacting your gp. Thanks again for replying

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