How do people cope with light sensitivity? - LUPUS UK

LUPUS UK

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How do people cope with light sensitivity?

F1zz profile image
F1zz
11 Replies

In the evenings I have to have lights switched off and sit in the dark. I do have light blocker glasses but only help minutely. It's very irritating for my family. Any help appreciated

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F1zz
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11 Replies
Spanielmadlady profile image
Spanielmadlady

Are your lightbulbs uv free ? X

F1zz profile image
F1zz in reply toSpanielmadlady

Where can I get them?

Spanielmadlady profile image
Spanielmadlady in reply toF1zz

I got mine from amazon as I cant go out to shops due to shielding.i changed mine as I could no longer get the bulbs for ceiling light.google it for more info xx

Also take the same steps as you would outside. Sunscreen long sleeves and hat x

WinterSwimmer profile image
WinterSwimmer in reply toF1zz

LED bulbs are now available everywhere and getting cheaper. They give off no UV.

moorebluesky profile image
moorebluesky

Not sure if it would help for you but I found some smart light bulbs that you can change the brightness and colour of.

happytulip profile image
happytulip

Get the LED lights but not the super bright ones. You need the softer LED lights. I am extremely photosensitive and have to avoid UV at all costs

F1zz profile image
F1zz

Nothing happens to my skin, I just have to shut my eyes and switch it off otherwise I get extreme headaches.

F1zz profile image
F1zz

So is the light sensitivity eye damage then?

NewEngland3 profile image
NewEngland3

Get old incandescent light bulbs, best are lower energy so the 40 and 60 ones/ I know the EU and US banned them but you can still find them at some places and they still make them for fridge/mechanical use. Get a lamp where the light bulb points upwards so away from you. Doing this I have had no issues, yes extremely light sensitive,

F1zz profile image
F1zz

Thanks everyone

Cate2262 profile image
Cate2262

Light from standing lamp from just behind me rather than above in front if my eyes. You can even get those adjustable lamps where you can direct the angle of light. Or dimmer switches on overhead lamps can help. If light from television bothers your eyes consider a projector television where again the light source comes from behind not from in front of your eyes. I am better at the cinema and I think it is this reason that the light source comes from behind and goes onto screen. Hope you find a solution for you. 💜💪🦋🙏🏼

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