How do people cope with light sensitivity? - LUPUS UK


28,922 members25,331 posts

How do people cope with light sensitivity?

F1zz profile image

In the evenings I have to have lights switched off and sit in the dark. I do have light blocker glasses but only help minutely. It's very irritating for my family. Any help appreciated

14 Replies

Are your lightbulbs uv free ? X

F1zz profile image
F1zz in reply to Spanielmadlady

Where can I get them?

Spanielmadlady profile image
Spanielmadlady in reply to F1zz

I got mine from amazon as I cant go out to shops due to shielding.i changed mine as I could no longer get the bulbs for ceiling it for more info xx

Also take the same steps as you would outside. Sunscreen long sleeves and hat x

WinterSwimmer profile image
WinterSwimmer in reply to F1zz

LED bulbs are now available everywhere and getting cheaper. They give off no UV.

Not sure if it would help for you but I found some smart light bulbs that you can change the brightness and colour of.

Get the LED lights but not the super bright ones. You need the softer LED lights. I am extremely photosensitive and have to avoid UV at all costs

Have you tried a red light for retinopathy repair and calmness? I’ve got a red LED lamp.

Newby12 profile image
Newby12 in reply to

Yes, red LED lamp has no uv or blue in it and this wavelength causes the damage and sensitivity.

in reply to Newby12

Skin and light sensitivity?

F1zz profile image
F1zz in reply to

Nothing happens to my skin, I just have to shut my eyes and switch it off otherwise I get extreme headaches.

F1zz profile image
F1zz in reply to

So is the light sensitivity eye damage then?

in reply to F1zz

It’s the invisible ultraviolet (uv) light that causes the damage: skin cancer, eye damage etc etc. Just look at all the sun worshippers with dreadful facial and bodily skin!😱😢Could be an alert!?🤔

I usually wear dark glasses and a hat when outdoors.

Get old incandescent light bulbs, best are lower energy so the 40 and 60 ones/ I know the EU and US banned them but you can still find them at some places and they still make them for fridge/mechanical use. Get a lamp where the light bulb points upwards so away from you. Doing this I have had no issues, yes extremely light sensitive,

Thanks everyone

You may also like...