Hi I'm new to this forum, never wanted to admit to my SLE before (hoped doctors would say they misdiagnosed me), I've been diagnosed for 2 years now (suffering since I was 15.. now 23). This is my second proper relapse since being diagnosed; currently 4 weeks in, (although not as bad as my first thanks to hydroxy...I had a massive flare during my second year of uni resulting in my diagnosis). I've been fine through a pregnancy and now a year on it's all come back so I'm having a little bit of a life panic. My lupus effects my joints mainly my hips, knees, elbows and fingers with muscle pains around those areas too making it very difficult to move/do normal everyday things at the moment. Fatigue, rash, mouth ulcers and hair loss are also there but I have also started to get really breathless, keep getting headaches and getting sporadic stomach pain which is new to me, I'm not sure if it's lupus linked or not, but hate going to the doctors all the time. Being a single mum to a 1 year old, currently not working I have started worrying about the future and how possible it is to work and bring up a family with lupus and what type of work are best suited (I've always been in education before now so basically starting again). If anyone has a similar story/ any advice please share.
Last edited by SLC03
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