Rhumatology appointment

[Kat-]

Morning all hope everyone is well

I've been quiet for a while as I've been back at work and college starts next week 😊.

I'm now happily single and less stressed as my ex turned out to be pretty horrible.

I have an appointment on Tuesday with Rhumatology not sure what to expect as I have lost faith in them.

My hands and knees have been really bad over the past few weeks still having a lot of kidney pain but no stone's.

I stay out of the sun as I know it makes me feel terrible but i don't want to talk to soon but I feel so much better as I don't feel stressed I think that was a big factor in my last flare up.

Any advice suggestions about tomorrow's appointment would be much appreciated.

Thank you 😊💝

[Spanielmadlady]

Hi kat so lovely to hear from you.i got the impression he was making your situation worse but it wasnt for me to say get rid.im single and wont have it any other way now.it takes all my energy to cope with myself let alone with anyone else.hows your daughter doing ? Mine has just returned to work ...mat leave over already .

As for tomorrow try not to judge everybody by past experience.try to go in completely a fresh.be confident and tell them exactly how things are,tell them how it makes you feel and how it impacts on your life, take notes with you if that's easier then trying to remember.dont be afraid to ask them ask them what a treatment plan will be ask them about monitoring or follow ups.ask them to explain....

Good luck with college ....hope it's not too much for you .

Keep smiling my lovely big hugs and sloppy kisses 🤗😘 xSMLx

[svfarmer]

So sorry to hear that you and your ex have split but good that now you are less stressed. As for your appointment tomorrow what I do is always write down any questions I want to ask and take lust with me so do you don’t forget anything. Good luck xx

[stiff19 in reply to svfarmer]

Have you a handsome man doc ? 😂😂 sorry couldn’t resist I know you meant list 😂 I am the worst one for wrong spellings, crazy predictive Text 😂😂🤗x

[Krazykat26 in reply to svfarmer]

U gave me a chuckle too sv 🤗🤭I always keep my lust in my diary!! 🤭

Mind u I was texting my sister last night n told her we were painting the bathroom dickhead blue!! 😹🤦🌈😽😽Xx

[Kat-]

Hi my lovely I'm at work at the minute but I'll be on tonight for a bleather. You are absolutely right he was making things worse glad to be rid. Chat soon xxx ❤️

[Spanielmadlady]

Ok catch you later xx

[RosieA]

Lots of great advice. If you have someone you trust you could ask to put them on speaker phone so that they can listen, make notes, prompt you if there is something you have forgotten etc. I have found this 'assistance' invaluable especially if you are feeling vulnerable. These long awaited consultations can make us a little stressed and it's amazing how much we forget. I always summarise the meeting at the end to ensure I have remembered all the important bits.

Sometimes it doesn't hurt to let the consultant know how you are feeling about the meeting - 'unheard' etc whatever is approprite. It can sometimes galvanise them to understand where you are coming from. Hope that helps a little. x

[Spanielmadlady in reply to RosieA]

Summerizing is something I do too 👍 not only so I have it straight but also to remind them what theyve reccomended/ promised xx

[Kat-]

Evening all how's everything feeling today.

Thanks for all your great advice I've started we things down I'll be there all day lol xx 😊

[Kat-]

Afternoon lovelys hope everyone is well

Yesterday's appointment was a farce they have now decided that I don't have lupus they aren't 100% sure as my blood work is within the normal range whatever that means.

I feel like a complete fraud she didn't want to hear about how I've been feeling she seemed to have already made her mind up before I walked into the room.

So far I have to stick with the vitamin D meloxicalm and

co codamol go back in 6 months for a review any of problems.

Pain swelling exhaustion shortness of breath kidney infection see my GP. Excuse my language but what the F was the point of that appointment only to be fobbed off yet again.

I'm angry frustrated and to be honest on the point of saying fuck it stop all my meds and see what happens 😞 oh and try and get my weight under control x

🥰🌹

[Tinathebus]

Kat I know how you feel I have only had phone appt so far that was a waist of time everytime I mentioned any problems I have as they weren't pains in joints he just said well that's got nothing to do with me I am a rhummy! I know that but a rhummy is all I get to see for Lupus they need a kick up the back side sometimes

Take care of yourself

[Kat- in reply to Tinathebus]

Hi I'm finding it more frustrating as before lockdown the specialist has said I definitely have lupus now I'm so confused I don't know if I'm coming or going xx