I'm back in the room!! : Hippy Happy New Year... - LUPUS UK


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I'm back in the room!!

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Hippy Happy New Year everyone!! πŸŽ‰πŸŽ‰πŸŽ‰

I would like to take this opportunity to thank u all for your support last year..bug hugs all round!! In actual fact let's just have ONE GREAT BIG GROUP CYBER HUG RIGHT NOW!! πŸ€—πŸ’œπŸ€—πŸ’œπŸ€—πŸ’œπŸ€—πŸ’œFeel the love people..feel the love we all share for each other!! Oh yeah..feels good to me!! 😻😻😻😻

As far as my own journey is concerned..I took my fourth dose of mtx yesterday..n despite it being a bit tricky in the initial stages..I'm now feeling over the worst (for now)!! Had a flare (as expected) but I'm now really pleased with how it's going!! I've had no stomach issues so I can take them orally..n I'm having bloods done every two weeks which is a bit of a pain but hey..all in all..all is well in my world right now!! So I just wanted to share my news with u all because you're all fabulous!! πŸ€—πŸ’œπŸ€—πŸ’œπŸ€—πŸ’œπŸ€—

Pic is of my left hand during recent flare..when this happens I am pretty useless..with me it seems to be more on left side although right side often joins the party!! πŸ˜”But hey right now..today..in this moment πŸ₯Š things r good!!

Kat 😽😽 xx

24 Replies

So glad to hear you are doing better on the methotrexate, Karzykat26. Best Christmas present, right?!

Happy New Year and keep us posted on your progress.


Krazykat26 in reply to KayHimm

Thank u Kay πŸ€—πŸ€—

Yes best Xmas pressie ever..didn't feel like it was at the time..but now it does!!

Happy New Year to u πŸ’œ keep on keeping on!!

This group is fabulous...long may it continue!!

Kat 😽😽 xx

MEGS53 in reply to Krazykat26

Ouch, that looks so painful, KK. And I bet this is it getting better? Soooo pleased you're feeling more like your happy self, at last. Let's hope for a better 2020.

Krazykat26 in reply to MEGS53


Happy new year to u πŸ€—πŸ€—..thank u for the ouch!! This pic was taken in recent flare over Xmas..n I'm happy to say that I'm making good progress now

Onwards we go together through 2020..πŸ€πŸ€πŸ€πŸ’œxx

stiff19 in reply to Krazykat26

Looks soo painful πŸ˜– the warrior returns πŸ‘ so glad you feeling better and long may it last πŸ€—πŸ€— you’ve been missed πŸ€—πŸ€—πŸ€—πŸ’πŸ™πŸ‘

Krazykat26 in reply to stiff19

Thank u stiff πŸ€—πŸ€—

Yes at times like these I find it practically impossible to stay in touch with u all..can't even lift my phone let alone type!! Happy to say now though that things have improved!!

Happy new year to u n I hope that u make some good progress through 2020 with us all behind u!! 😜πŸ₯Š


stiff19 in reply to Krazykat26


I have to stop whining. You’re such a warrior. I wish I could show you my little sores that are nothing compared to this.

You’re so strong. Sending you strength


Doaty..u never whine!! 😻This is my hand in full flare n thankfully the worst is over (for now)..skin is everything with my particular form of lupus n boy do I know it!! Soles of my feet r the same when the 🐺is attacking!! But today is a good day n u lot help me through the bad times..thank u πŸ€—

May 2020 be the best that it can be for u..keep on trucking!! Be the best that u can be always..no matter what!! 😽😽Xx

You’re so awesome. πŸ’›


Ouch KK! I was having a flax muffin, then saw your hand and have suddenly lost all appetite. I hope your hand heals quickly. That looks so painful!!

πŸ™sending you all my best (and better than my best)

Krazykat26 in reply to Hidden

Ooops..sorry brook!! πŸ˜”πŸ˜”

No really go back to your muffin coz that was me in flare over Xmas..n now I'm happy to say things r improving!!

It's u lot that keep me going through the tough times..even though I'm not chatting when this kinda thing happens I still read posts n I love the support n sharing here..with people who understand how it is!!

Happy New Year to u n I hope that 2020 brings u all that u wish for πŸ€—πŸ€—πŸ€—


Hidden in reply to Krazykat26

Ah KK, glad you are over this one. I hope for no more and that 2020 is a great year for you as well. Thank you!


Krazykat26 in reply to Barnclown


Happy New Year to u Coco..we spent last summer struggling through the shingles experience n your information n support kept us going..cyber handholding all the way 🀝🀝🀝

Thank u πŸ€— πŸ€—πŸ€—




Sorry to see your hand with those rashes, must be pretty painful?😒

Are you using or have been prescribed high strength/low strength steroid cream or lotion?

My red hand rashes (raised) often flare up but the steroid cream/lotion makes mine less angry and calmer.

Hope it works for you?

You must see a dermatologist/GP? quickly.


Krazykat26 in reply to Hidden

Thank u Sue_petal for your concern πŸ€—πŸ€— Happy New Year to u!!

In answer to your question..yes I see a dermy n my GP is great!! I have all the lotions n potions because my skin is most affected by lupus!! I have betnovate n dermovate ointment which as u know r two different strengths..n I have fludroxycortide surgical tape to wrap around my fingers when they're probing difficult to heal..or cracking n splitting!! I use Dermol 500 lotion all the time n I have to keep dressing my feet coz the soles r pretty much the same as my palms!! When I flare I'm pretty much crippled!! πŸ˜”πŸ˜”

However I'm very relieved n happy to be posting here again..I miss u all when I can't participate!!


Hidden in reply to Krazykat26


Just hope your flaring is more controllable.

You’re certainly using all the right meds but with us lupus sufferers so many things can bring about a flare including stress.😒

Christmas can be very stressful and all this self management and self care can be so tiring...

Take care and all the best.


OMG that looks soooo sore!!! You have been so brave and strong. So delighted meds working and that you can face this new year and decade with optimism. Great to hear your news as always. Happy and healthier new year, with my very best best wishes and large hugs, Lily

Krazykat26 in reply to Lily77

Aww thank u Lily πŸ€—

Happy New Year to u πŸ€—πŸ€—

Last year I was fortunate enough to invest in a lupus handbook..u may of heard of it..it's called How To Stay Sane In Pain?!?! Believe me that book has been priceless to me!! So u especially r with me during the tough times..right here in my living room!! πŸ˜‰πŸ˜‰

Extra big πŸ€— πŸ€—πŸ€— for u lady!!

Kat 😽😽 xx πŸ’œ

I can't believe that you get this on your poor feet as well.....how tough are you???!!! Thank you, thank you about my book, it makes me so proud when I get feed back that it has helped. Take great care of yourself, Lily

Hi Kat,

So that’s what you’ve been up to!πŸ₯΄ I’ve missed you too but so glad you are in good spirits despite the pain you must be enduring.

Thank you too for all your support, always putting others before yourself and keeping us all fighting🀺πŸ₯ŠπŸ₯Š yet never losing sight of our sense of humour. πŸ˜‚πŸ˜‚ You are a real inspiration Kat! I sure do feel the love πŸ’“and I hope you can feel it coming back to you from all of us! Loveya! πŸ’“πŸ’•πŸ€—πŸ˜˜

Spotty..dear Spotty πŸ€—πŸ€—

Last year we had a right giggle regarding your awareness campaign!! 😹😹Even when I'm stuck indoors feeling down there's always someone who cheers my spirit n warms me cockles..n u lady have done that for me many a time!! So Thank You for being here!! πŸ’πŸ’œπŸ‘πŸ˜½πŸ˜½Xx

The feeling is mutual Kat. πŸ₯° I intend keeping the awareness campaign going so we’ll no doubt have more giggles along the way. 😁 I’m depending on you and your wheelchair for the quick get away! πŸ˜‰πŸ€—πŸ˜˜

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