I was diagnosed 4 weeks ago with SLE, and I’m scared,I have an underactive thyroid gland diagnose 3 months ago and Reynolds syndrome for 6 years probably longer. that make it 3 autoimmune diseases. I have been told by my GP to go and look it up on the internet as its going to take 10 weeks to get me an appointment with a specialist in the U.K with my home local hospital. My GP is good and knew what she was looking for, she ran all the right tests very early so i am happy for an ealy diagnoses
When I read everyone experience’s I feel I should be great full that my symptoms are not that bad but some days they feel like they take over my day, I feel emotional about the unknown, I’m losing weight 2-6kgs a week and can’t control it which is worrying me. My hands and wrists hurt even though I am on minor pain relief for them, I really worried about the sun, and how that will affect my body, does it affect everyone or just some poeple? i'm worred about picking up germs from where i work, (with children)
On a plus I have a wonderful family and a fantastic group of friends that I know will support me no mater how hard it gets.
Any advice, any help would be great