Hi does anyone else have Supraventricular tachycardia

[Gizmo81]

Hi does anyone else have Supraventricular tachycardia? Just seeing if it’s common with lupus symptoms

[Ianrussell69]

I have ventricular tachycardia bit of a worry at first angiogram etc but all ok when I get it it takes my breath away and can make me feel weird but I don’t take any meds for it I was told to just get 9n with it 🤔

[Gizmo81 in reply to Ianrussell69]

I normally have it and lasts few minutes but last night ended up in an ambulance it didn’t stop for 35 mins and heart going 200 it was so scary, they are still trying to find out if I have lupus so was worried this is a common trend, just add another symptom to the list

[Boudica1]

Yes I have SVT+ Couplets. When symptoms start it's best to sit up and not lay down as laying down can make it feel worse. It's a bit of a #*! ger in the middle of the night being woken up with it especially when you've not been sleeping well for some time.

I take it you've had a 24 hour holter monitor and seen a Dr after. Do you have to have medication for it? They put me on Calcium Channel Blocker's for mine as I couldn't have Beta Blocker's due to lung problems.

Getting used to the symptoms now so it's just a normal everyday or night thing even if it's somewhat annoying at times.

Take care.

X

[Gizmo81 in reply to Boudica1]

Going for heart scan and GP today to discuss it. Is your connected to lupus? I just don’t know why I have it, but have many symptoms so not sure if connected or not

[Boudica1 in reply to Gizmo81]

I've no idea if it's connected to anything, I have SS although they check my blood every year for lupus.

I've had ectopics for decades and it's mainly since last year that things have been getting worse which is why they checked it out.

Apparently they are quite common and most people don't even know that they have them. Also normally they are considered a minor thing unless it starts to cause a problem.

It is a worry at first but as you are seeing the Dr about it they will do the checks to see if you need anything for it.

I had gallbladder surgery in the summer and it didn't cause a problem at all, in fact they were more interested in the skin issues I have.

It's hard not to worry about it but you do get used to it and carry on as normal. But like I said before if you have any palpitations don't lay down as it makes it feel worse. Sit and rest and wait for it to pass.

There is a very good NHS page about it and it will tell you what you need to know and do. Above all anyone can have them and live a normal life.

Take care.

X

[tiredmum]

Yes I have SVT too, the first time I had it I was admitted to hospital with a heart rate of 200. It eventually calmed down but as soon as I moved it shot up again.

I have been put on beta blockers which seemed to do the trick until a few years ago when I had to have them increased as the palpitations returned.

It does feel weird but it is manageable. Good luck x

[Gizmo81 in reply to tiredmum]

Yes mine was 200 and lasted 35 mins, I thought I was dying! Having all tests tomorrow and ultrasound. I just feel very weak, light headed and not well, hopefully they find what causes it, did they find out for you what causes it? Do you have lupus also?

[tiredmum in reply to Gizmo81]

Never found the cause. I didn’t discover that I had Lupus until many years later. I just presume it is all part of the large umbrella of Lupus symptoms. I still get it occasionally but on the whole the beta blockers are brilliant. I have been discharged from the cardiologist so that is positive.

Good luck with your appointment.

[Gizmo81 in reply to tiredmum]

Thanks so much for your story, fingers crossed they sort mine also

[1sam]

Hi. Yes, even before lupus appeared. In my case it is vasovagal syndrome.

Beta blockers helped