Lupus symptoms??

[SLE-Warrior]

I have been experiencing heat sweats. I have noticed that I am always hot. I live in London and recently the temperature has been much cooler. I need to have the fan constantly on because I am always hot. I am on prednisolone, azathioprine and hydroxychloroquine and am not sure if it's the side effects of the medication or lupus symptoms. Has anyone experienced heat sweats because of Lupus (SLE)?

[NeuronerdDoaty]

I’m normally freezing from the inside out. But, I have had lupus for more than 15 years and the heat when it comes feels like I’m going to fry. I’m past menopause. I have 1-3 a night now. I hope you get relief.

[SLE-Warrior in reply to NeuronerdDoaty]

Thank you for your reply. How do you deal with the heat sweats? I'm not sure whether I should mention to this to my rheumatologist?

[NeuronerdDoaty in reply to SLE-Warrior]

I tell my doc everything. I try to stay hydrated. I have less when I’m well hydrated. I have less if I do gentle exercises and of course stay out of the heat. It’s like I build it up in my bones for 6 hours later. It’s weird. There might be some other people with good answers. I suffer through them. Mine last 5-20 minutes. My aunt is always on fire (lupus) since they took her off plaquenil.

[Treetop33]

I get them but I am also menopause age too. Plus I've had a few UTIs. Sweats can, I've heard, be related to your adrenals releasing cortisone to combat adrenaline when you have low blood sugar.

[Lupiknits in reply to Treetop33]

Interesting. I’ve had cold clammy sweats recently. Well past an easy menopause. A couple of evenings ago I felt really bad, with palpitations and hot sweats going cold. I found myself eating some wine gums instinctively, and it settled. I’ll monitor that.

[Treetop33 in reply to Lupiknits]

Hmm yes a sugar input. Apparently as our hormones change we become vulnerable to such imbalances. The recommendation from one source is to eat little and often, and high protein/fat and low carb.

[Oshgosh]

M th Same.have hot sweats every evening. Menopause has been and gone.

Not too bad in the day.when evening comes,will have 2 or 3 sweat type episodes.prefer to see n thecl side,but go dead hot,unpleasant to say the least. Happens in bed at night.sleep with a sheet and a fleecy dressing gown. When the. Heat comes. Just throw the dressing gown on the floor.

I can’t use the cooling pillows etc as I am so cold when I go to bed.

Am on Prednisolone 9 mg daily. On Azatropine,but have had to stop it for a week because liver bloods going up. For bloods again tomorrow,wish me luck, eyed to be able to start taking the Azatropine again!

I think the sweats are getting worse ,have a sore left forearm.am presuming it’s a symptom of lupus. Lupus is so sneaky!

[NeuronerdDoaty in reply to Oshgosh]

I hope your liver tests come back good. We call lupus the snake in our house. It just sneaks up out of nowhere sometimes and does something weird to me.

I think hot flashes are so common due to diseases and medications that docs don’t even take them seriously anymore. Also patients are getting older so I think our endocrine system bugs out even without AI.

I did giggle at Oshkosh because I do the same thing at night. Off comes the night shirt but my right sock always stays on. It’s my mediator. Lol! I feel like I’m being microwaved.

Best of luck to you. 💛

Doaty

[Roarah]

Hot flashes are often a sign of cardiovascular disease so please do not assume they are lupus related. Rule out other causes too. Oshkosh, your left arm plus new onset of sweating warrants a visit to your GP.

[Oshgosh]

Thanks,I had 2 nuclear heart scans 2 weeks ago.awaiting results. Fingers crossed that I’m ok