Just considering

[Ladylupus]

Hi everyone, my first post! I have read many though over the past few weeks since I joined the group. I have Dystonia, SCLE, Primary Sjogrens and have been through Breast cancer 2009, total hysterectomy 2013.

I have recently thought about mobility aids. I have balance issues along with the pain and fatigue and need to sit at very frequent times. I am 56 and never imagined I would be needing any such thing. Is it being over dramatic to get a rolling/ seated walker.? Does anyone here use one? Does it help?.

Hope everyone has a " good" day.

Karen 💖💖

[Hidden]

Yes I have one, I can't stand up straight and need support on both sides due to back trouble. I used to be able to walk with a stick, but that's no good any more, but my fold up rollator with a seat (it fits easily in the boot of a car) is wonderful, I can't get out without it. I got it from a local shop that sells disabled equipment, but Amazon sell them too.

[Ladylupus in reply to Hidden]

Hi,thanks, I'll look into it. I suppose my reluctance is more of not wanting to feel another part of the previous " me" is drifting away. I'm sure we've all been there many times. Xx💖

[Roarah]

I think the more we move physically the healthier we are so my answer is no, if you still have mobility, even limited, use it! Take breaks when needed, use a walking stick for support, I did initially after my stroke when my leg was still partially paralyzed, but do not become even more sedimentary than these diseases already cause. Blood clots with your history of both cancer and lupus are a very real concern and the less you move the greater your chance of one becomes.

[Ladylupus in reply to Roarah]

Oh gosh no! There is no intent to be sedentary. I am unstable when I walk due to balance being off. Therefore a cane wouldn't really be the best thing for me. I'm hoping to stay reasonably upright and mobile as long as I can. Xx

[Roarah in reply to Ladylupus]

Have you considered vestibular therapy for your unsteadiness. It made me sick as dog during therapy but it retrains your brain to handle the vertigo when it hits and has helped me immensely.