Pins and needles and small blisters with Lupus Ra... - LUPUS UK

LUPUS UK

32,061 members28,384 posts

Pins and needles and small blisters with Lupus Raynauds and Scleroderma does anyone else suffer with this

Jennie73 profile image
8 Replies

I suffer with pins and needles a lot in my hands and feet I was told by my consultant that it was all part of the conditions but I dont know how to ease it as it gets painful.The blisters I get are red they sometimes go itchy and dry up or they start getting sore but I'm now getting them in my head.

Written by
Jennie73 profile image
Jennie73
To view profiles and participate in discussions please or .
8 Replies
loopylady profile image
loopylady

Hi Jennie73, I too suffer like you with this, the sores you are suggesting sound like chilblains which I suffer with from as soon as the weather goes very cold until late spring. I start wearing gloves from about October and try and keep my hands warm whenever possible and try and avoid extreme temperature changes. I have been prescribed Adelat, this helps by opening the blood vessels and allowing the blood to flow quicker to my fingers and toes. I hope this helps,

Loopylady x

kaw86 profile image
kaw86

I get that all the time I have to say light exercise helps. I get really itchy with it. I didn't even know i had Raynauds until my doctor read out my notes from 3 years back! Weird*.

Well hope things ease up a bit for you and best thing is to always keep your visits to the doctor frequent. :) I think my doctor knows me lil too well lol.

*hugs*

x

Jennie73 profile image
Jennie73

My doctors sick of seeing me I think too lol I get very itchy like you its not pleasant is it.I had iloprost treatment last year to open up the veins I've had the treatment for quite a few years now but my body keeps rejecting it the hospital said it could be because my body is too used to it now. xx

lupie-Cathy profile image
lupie-Cathy

I've been given Gabapentin for the pins and needles its an anticonvulsant but is also used for nerve pain especially in shingles and neuropathy, I find it helps but doesn't stop the feelings totally but makes it bearable it takes a while to get up to a dose that suits though so you have to be patient see what your Dr says xx

Jennie73 profile image
Jennie73

Thankyou for telling me that I'll talk to my doctor if theres anything he could give me got to be careful though as im also epileptic xx

clairektng profile image
clairektng

I also have raynards along with lupus.... I did get some small blisters that seemed to appear under my actual skin that were sore and itchy but they started to dry up. I asked my gp and she said it was part of my raynards!! Am really suffering with my toes at the mo mainly with chill blaines tho!!! xx

nancarolyn profile image
nancarolyn

Hi Jennie. I have the same stuff you have and more,Have blisters in my scalp for months and derm has still not given me anything to get rid of it. My hair is long and beginning to get very thin. Has anything helped yet for your skin problems. Good luck and God Bless You. I am from USA in a little state called Maryland.

nancarolyn profile image
nancarolyn

yes and help with whatever works

Not what you're looking for?

You may also like...

does anyone know where to find a flexible job suitable for people with SLE?

Hello everyone, I hope you all are doing good during this days, I wanted to ask if any of you...

Feelings of disappointment

With having Lupus and a few other conditions, being on steroids and suffering from anxiety and...

Colonoscopy update and thanks

Well I survived! I had sedation and it didn't hurt at all. I agree the worst part was the prep -...

Sun protection. Mineral sun lotion on a budget

Staying protected from UV rays is high on many peoples list this week, with layering and staying...

Opthamology appointment re Hydroxychloroquine

Are any of you going to an Eye hospital for the yearly checks if taking hydroxychloroquine? I’m...