Ringing in the ear??

[thestorm]

Hi all, another question here. Does anyone get a high pitch painful ringing in the ear, followed by a halo type headache? This symptom is new, and beating me all day. I have tried OTC naproxen, cold paks, rest etc. But nothing is helping. Any suggestions? Help please. Dr is out till next week. Thank you all for any advice. wilting here. thestorm

[Roarah]

Could be a vestibular migraine. Sometimes caffeine plus aspirin or Tylenol help if it is a migraine and the ringing can be your aura. Any vertigo? Should see your doctor with any new headache pattern when he returns.

[thestorm in reply to Roarah]

Thank you Roarah, yes some vertigo, dizzy, kind of sick to my stomach. Pain is traveling down left side of neck, where I also have a chari malformation, and 4 cervical disc replacements. I am familiar with those pains. I feel slight feverish, low temp. Some dime size lump has appeared behind my left ear lobe, don't know if that has a connection, I thought maybe a bug bite? Trying to rest.. I will try the caffeine with non aspirin, I happen to be allergic to Tylenol, go figure. Thank you so much for your help and suggestions. I am at a loss. Sincerely unwell. blessings. Thestorm

[overnighthearingloss]

Do you know if it improves at all if you are in a different location. I have recently become aware of electro magnetic waves and the damage they can do to affected people.

We are not well anyway when we have lupus so its another assault to an already damaged body and makes us an easier target.

The big recent change is the introduction of 5g, which seems to be more advanced in the US than in the UK. We have just started the rollout. Smart meters are another big source of EMFs.

If you find they are worse when you are at home it might be worth doing some reading on the subject to find ways to protect yourself.

Other potential causes could be a change of diet or medication routine, and of course the biggie stress.

[thestorm in reply to overnighthearingloss]

Hi, thank you for that insight, you know we just moved to a new place months ago. it is very rural, not much here, but that was the idea. To get away from metropolitan regions. Love the country, I will pay close attention to when I leave the house to see if there is a difference. I am also writing down all my symptoms, as I wrote the other great friends here, I cannot get to a DR until August. But I am going to try and see someone if they will have me, maybe the ER? Thank you again for the support and information, every bit helps. and knowing you are all out there in cyber land does bring me comfort. I will keep posting as this unfolds, if not for but because you all help very much.... peace and blessings thestorm

[overnighthearingloss in reply to thestorm]

It might be worth trying to spend more time in nature when the headaches hit. If they are emf related they will improve when you are in nature, unless there are power lines or a massive phone mast nearby, as you will be earthing yourself to a greater degree and removing negative charges.

Just read something yesterday evening that salt lamps in the home help with this and cereus cactii. Both apparently help to absorb the negative charges. Also put your phone on airplane mode when not required. That's not so easy. But dont sleep with it beside your head.

Led lighting may be another trigger. If you do get led bulbs opt for those that say they are the warm lighting. They apparently emit less of the unwanted stuff.

[Hidden]

Does it improve positionally at all ie lying down in darkened room or is it constant? I ask because I had a cervicogenic headache lasting months and the neurologist and GP both wondered if it might be a CSF leak (spinal fluid pressure) - which can cause the symptoms you describe. In the end they decided it related to my cervical disc herniations and it went away after a flight when the pressure caused my ear to kick off badly. You could look up CSF leaks?

[thestorm in reply to Hidden]

Hi Twitchytoes, position does not seem to matter, yes it is constant, and I do have degenerative disc disease, had my c3-7 fixed in 2015. That could be a very good place to start if I could get a darn Dr appointment. Sorry, just very frustrated here. I will take your advice too. Thank you so much for caring. Peace blessings thestorm

[Hidden in reply to thestorm]

Still worth considering with your symptoms and history perhaps?

nhs.uk/conditions/intracran...

Idiopathic IH

In many cases, the cause of chronic IH is unclear. This is known as idiopathic IH, or sometimes benign IH.

It mainly affects women in their 20s and 30s, and has been associated with:

being overweight or obese – most cases occur in overweight women, although it's not clear why

hormone problems – such as Cushing's syndrome, hypoparathyroidism, an underactive thyroid or an overactive thyroid

certain medications – including some antibiotics, steroid medication and contraceptive pills

a lack of red blood cells (iron deficiency anaemia) or too many red blood cells (polycythaemia vera)

chronic kidney disease

lupus – a problem with the immune system

But these are only linked with idiopathic IH, they're not necessarily causes. You can find a full list of conditions and medications associated with idiopathic IH (PDF, 21kb) on the IIH UK website.

[thestorm in reply to Hidden]

Thank you Twitchytoes, I am going to that web site today, and you are so kind to keep me on my 'toes', ll gotta laugh some times, and I am older than that, almost 60, I am not overweight, I did have labs done in April, but I did not get a Thyroid panel done, I will definitely talk to the DR, one I can get to see me. Great advice. Keep letting me know if you have more ideas, as I am writing them down. You take care, grateful you are there. ❤ peace thestorm

[Hidden in reply to thestorm]

If you scroll down you’ll see Lupus on the info sheet - that’s why I got this extract - plus symptoms and your history of neck surgery. It was the noises and description of aura like sensation plus nausea and headaches that made me think of CSF leaks as I became very preoccupied by them when I had headaches and nausea plus extra loud tinnitus.

I’m still minded to think this was what I had because of ear leak but physio, GP, rheum and neuro all dead set on cervicogenic headaches so probably correct. Especially as I was hunching a lot more than I realised - now my working/ reading position has improved and no more headaches.

Diazepam is the go to med for easing muscle spasms in the neck and at a high dose it knocks mine into submission. X

[thestorm in reply to Hidden]

What is Diazepam, muscle relaxer? Years ago, before I was diagnosed with Lupus, My headaches were sooo sever I was Hospitalized many times, they may have tried that medication but I wouldn't remember. I was placed on Neurontin. Are you familiar with it/ I stayed on it for years, and Botox injections, then in 2010, my neurologist found I had a Chairi malformation on my back left lobe of the brain. Sooo much pain again, I elected to have surgery to help that formation, and after THAT THE MIGRAINS AND RINGING IN MY EAR STOPPED! IT WAS A miracle i TELL YOU. i AM MINDFUL OF MY MALFORMATION, AND THE DR SAID IT CAN GROW BACK, i HAD THAT CHECKED IN January OF THIS year. It was under control. But now I am wondering as I am reading what you, and many others have suggested, that maybe it could be triggered again. I would be afraid. that was a terrible painful time and recovery. But on the better side I am looking at the information you so sweetly gave me, and I know I am not really alone, everyone here is so kind, and humble, I draw strength from all of you. Keeping the faith, that makes us strong, peace , blessings thestorm

[Hidden in reply to thestorm]

Diazepam is a muscle relaxant and yes it was the mention of chiari malformation that made me wonder because this can be a cause of cerebral spinal fluid leaks. If it is diagnosis and treatment are very important so just keep it in mind when you see the doctor - bearing your history in mind. Take care thestorm - thinking of you 😊🤗

[Hidden in reply to thestorm]

csfinfo.org/education/patie...

“What is Chiari?

A Chiari malformation (CM) is a structural defect in the area of the brain responsible for controlling balance i.e., the cerebellum. Specifically, when a portion of the cerebellum, known as the cerebellar tonsils, is situated under the funnel shaped opening to the spinal canal (i.e. the foramen magnum), it is known as a Chiari malformation.

The cerebellar tonsils can interfere with the movement of cerebrospinal fluid (CSF) between the skull and spinal canal. The interference can result in the collection of cerebral spinal fluid in the subarachnoid spaces of the brain and spine. The resulting increase in pressure on the brain and spinal cord from the accumulation of cerebrospinal fluid can lead to hydrocephalus which manifests in a wide range of symptoms.”

[thestorm in reply to Hidden]

Thank you for the caring and thoughtfulness, I am glad to know you are in my corner, when all else seems lost. So many here are so kind in sharing there time, and knowledge. with all that is going on with myself, it is very easy to overlook the vast possibilities. I will bring this to a Dr's attention when I can see one. Or if these symptoms keep grogging me down, a trip to the ER. As new symptoms seem to be showing up daily, I am having trouble concentrating, I am typing incorrectly, speaking, but my brain and mouth are not in the same game, and such. Any more info on ideas or thoughts, I greatly appreciate. You take care, be well, momentary lapses of reason Peace thestorm

[Hidden in reply to thestorm]

You are very welcome - let us know how you get on at ER and best of luck. X

[Roarah]

Can you see an ENT quickly. They can do a lot of tests to see if your symptoms are most likely vestibularly or centrally (neurological)caused. It could be a lot of different things. Any hearing loss happening? A head MRI, w/ and w/o contrast is warranted if it continues and no infection is suspected to rule out a certain type neuroma or bone malformations. Antivert, meclizine, is sold in the us over the counter as Dramamine, a motion sickness drug, it helps settle the vertigo and nausea but not the tinnitus. Might help until you can see a specialist. Hope you feel better soon.

[thestorm in reply to Roarah]

Thank You Roarah, that is great information. Yes trying to get an ENT appointment, but that to is like pulling teeth here, as I am new to the area that I now live in, and my new GP, cannot see me until August as a new Pt. But if it goes on I will take a trip to an ER here. Health care here is not all that it is cracked up to be. Greatly app[appreciate the info, and advice. I will let you know. peace blessings thestorm

[thestorm]

Hi all, so I called my old DR's, and told them all the symptoms, I was assured by them that it is not my heart. Sunday there are NO specialists at the Hospital ,so I am going to try and tough this out till Monday. Keeping a list of everything to take with me. Maybe that will get there attention. Thank you all for your ongoing support, care and kindness. peace thestorm