lupus erythematosus panniculitis ???

[Angie245]

lupus erythematosus panniculitis has anyone else suffered with this? I’m going to be having a biopsy to confirm as I have two masses in my cheeks which cause me great discomfort. They can often appear bruise like. I saw my GP again today as struggling with pain and fatigue. I have been referred to ENT and have an appointment on the 27th June and an increase in painkillers.

My lupus results are still boarderline and unspecific where the words the GP used however he strongly believes it is Systemic Lupus. (SLE) My consultant has aired on the side of caution treating me for Lupus but giving me a diagnosis of (UCMTD)

Just wondered if anyone has had this or is going through this and if their bloods were boarderline or unspecific. I know we are all so different but these masses are causing me such great discomfort and everyone seems so puzzled! I have a constant full ache to one side but I wouldn’t call it painful. (If that makes sense!)

Thanks again!

[Angie245]

*Dull ache not full.

[Woods01]

Hi Angie,

I don’t have a full diagnosis yes. I had a biopsy on my wrist on Friday. I have rash/red blotches on my face and extensive facial swelling, my eyes are virtually swollen shut in the morning. I also have the redness/rash on my hips, knees, hands, head, elbows and wrists. I have had my bloods taken but I believe so far my thyroid result is the only positive one but I don’t know what that means?

Due to the extensive swelling I have started on the medication (anti malaria) prior to getting the biopsy and blood results which I expect to have by next Friday as the consultant is rushing it through as urgent.

I have had 2 punch biopsies on my right wrist, one has just one stitch and the other has 2 stitches. My face gets risen red lumps on it, they then expand and flatten out.

Sorry i can’t help further, I don’t know if that is what you have.

Xx

[Angie245 in reply to Woods01]

I get rashes butterfly on my nose and face, where the swellings are the best way to describe is bruise like. I have problems with joints swelling periodically and randomly. I also get rashes on my legs and hips which change from scratch like to smaller red blotches. I’ve been on hydroxochlorine for several weeks now and so far not seeing many benefits except eye dryness/itching has reduced and rashes to be fair are less frequent. They come up but nowhere near as bad as before.

The swelling was noticeable reduced when I was put on steroids. It had got so bad I couldn’t even walk. The lumps on my face where nearly non existent.

Those two lumps are the only two I have a present and have been there since I first started experiencing severe symptoms.

Thank you for your reply, keep me updated if you don’t mind. Are they looking at the same thing?