I have finally been allocated an appointment with a rheumatologist on the 30th of May. I ring everyday for cancellations but no joy so far. Please can someone recommend a good rheumatologist in London who specialises in Lupus. Realise I will need to go private.
Recommendations very welcome. Thank you in advance
You have the London Bridge Lupus clinic. I paid privately for my first appointment, and then was referred back to the kind gentleman under the nhs. I found him from this site, Professor DCruz
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Thank you so much Lisalou19, I will call and book an appointment as soon as they open.
Thank you whaleroad for the recommendation.
My current appointment is at St Mary’s Paddington - rheumatology dept.
Just made an appointment with Dr Kaul (private) for the 5th of April. Just want to get this sorted sooner rather than later. Thanks again for your help and advice.
How much is the private consultation? Do you have blood tests etc done before the consultation?
I paid £240, no bloods taken. Did a dry eye test and looked at my skin in depth.
With these appointments you need to take as much information with you as possible. I took all previous blood test results , photos, diary and a list of my symptoms. The specialist paid a lot of interest in my photos. You can have bloods done but costs a lot of money. If at the end of your consultation an immune disorder is suspected you can ask for them to write to your gp for a referral.
At the time I was already under a rheumatologist but wasn’t getting anywhere fast. So his letter to my gp asked for them to do a second opinion referral which was granted pretty sharpish x
Thank you. My stroke consultant referred me to the Rheumatologist, and I had my appointment today. She didn’t rule out Lupus and said she wants to see me again in 6 months. There wasn’t any positive indication of Lupus but lots of my symptoms seem to be pointing towards it. I previously had a positive result for Lupus Anticoagulant but this wasn’t shown on the blood test I had last week. On the symptoms diary... my sister used to use an app to keep track of a skin allergy. The app allowed you to take photos and diarise and make notes of symptoms. Do you know of anything similar that I can use? I tend to forget to update a paper diary. Thanks
I’ve been told it’s £230 for the initial consultation and £205 for follow ups. I have already had my blood tests done so hopefully won’t need any more
Take your blood results with you. You’d be surprised the number of additional bloods they want to take. Unless your already diagnosed. Ask for a nhs referral after too if they believe they can help you xx
Thank you Lisalou19 I am hoping for NHS follow ups
I have also seen Prof D’Cruz at Guy’s and St Thomas’s but have been with Dr Michele Bombardieri at Mile End Hospital for a couple of years and am very happy with them. This is NHS, however, so maybe for after you’ve seen someone privately.
My local rheumatologist was useless so I asked to be referred to the Guys Hospital lupus unit and I was lucky enough to get Prof D'Cruz. I think I had to wait 2 months for the appointment but it was well worth it. I don't think I've ever had such a thorough examination in my life. He even did an ultrasound of my finger tips to look at the blood flow because of my Raynaud's. I now see one of his registrars who is just as good. I hope you get the help you need.x
You won’t be disappointed with Dr Kaul. I travel from Pembrokeshire to see him and have recommended him to others who have found him excellent too. Good luck.
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