I’m kind of sick and tired (literally lol) of being in constant pain, I really want to get back to work and I’m considering taking hemp seed oil capsules (from Amazon) however before ordering I want to know if anyone else has had any benefits, side-effects or noticed any interactions with their medications.
Currently I am on 30mg of prednisolone, 400mg hydroxychloroquaine (Planequil) and 2000mg of Mycophenalate (MMF). I also take Omeprazole, Sertraline, Ramipril, Fluconozole, Atorvastatin, Co-Trimoxazole and codeine & paracetamol for pain relief.
Would be great if anyone had any info
Thanks fellow warriors 💜
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ButterflyEffect96
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I am sorry that you are struggling so much with pain just now. I am sorry but none of us here can give out medical advice regards pain relief, this would have to come from your doctor. I note that you are on a form of pain relief already, but there are other options that may be suitable for you, so definitely worth getting an appt with your doctors to discuss. Good luck.
Hi ButterflyEffect96, I have just recently started taking CBD as my pain was of the scale at times, I was haveing great difficulty walking, sitting and my sleep had gone down to a few hours a night with more pain killers throughout the night, I was in going to make a appointment at hospital ( my GP is useless) , however my consultant has left so presently I’m in limbo. So I started taking the oil I have had 3 weeks of full nights sleep unheard of before. I managed a 2 mile walk I haven’t done that in a year or more, everything seems more manageable. I thought long and hard before doing this, but I knew that I would be put onto steroids yet again if I went back to the hospital. I’m not saying this is for everyone but for me 3 weeks into it I’m getting relief and feel more like the old me. By the way I was diagnosed 15 yrs ago but have more than likely had it for 25 years. The meds I take are very similar to yours ie the first three on your list plus others for thyroid and Reynauds and then pain killers. Hope this is some help to you,
As loopyloo43 say look for a reputable company you don’t need to use it all the time. I am on 5.6% just gone onto this strength the one I’m using at the moment I purchased at Boots and they have an offer on as it is a considerable purchase, however it may not be for you.
Hi. I use cbd oil 8% from a reputable company I use itso I can have a better sleep and it does help and have not found I have had any major side affects if you can get a strength to suit your needs and use it firvwhen it’s needed most. cbd rich hemp extract drops 8% cannaboids it’s expensive to buy all the time but helpful😊
I checked with my pain consultant and he was happy for me to try CBD oil. I am on steroids 13mg at present, paracetamol, oramorph and pregablin.
I've tried several CBD oils and the one that works best for me is from Holland and Barrett. I initially tried the 5% one but it was too strong so I've switch to the lower dose.
For me, it helps me sleep and helps when I am in severe pain, this is often when I am leading up to my period or reducing pred.
It had been beneficial but I am unable to take it regularly as I also have POTS syndrome which means that I have a high heart rate and a low BP. As my BP is already low, the CBD was making it lower and I was getting really dizzy. But it has worked for pain and I was told it was ok to take with steroids so I'll have to double check that but so far all my consultants have been ok with it.
If it wasnt for the fact that I had POTS as well as Lupus I would take it more regularly. I practically halved my oramorph intake when I was using it regularly. As my pain consultant said to me, "its had the nasty stuff taken out so I'm happy for you to give it a go." Everyone is different and has different reactions. My cousin has tried it for her RA with no improvement.
I'd say it helped my neuropathic pain and sleep the most.
I've noticed that you aren't on any antiinflammatory medications such as ibuprofen or something stronger in the NSAID family. Is that because you have been advised not to? A lot of pain from Lupus is either inflammatory or neuropathic. Maybe you should discuss NSAIDs with your consultant in Thursday? Just an idea.
I used to take naproxen but was admitted to hospital in September because I was vomiting blood so they told me not to take any NSAIDs. However I will enquire about them again. I do remember naproxen did help especially with nerve pain in my neck and inflammation up my spine.
If i was you i would definitely avoid anything w codeine as it is super addictive. I tried it too and it didn't work well plus made me nauseous. And then i felt addicted. It felt aweful and i stopped immediately. Depending on the cause of the pain different medications will work or not. For me Cymbalta worked as my pain was coming from fibromyalgia, which is comon with lupus or MCTD. There is also Lyrica but i think it's super expensive as there is no generic yet. I wanted to try it but wasn't able to get my insurance to pay.
I have mentioned this to my doctors and they still haven’t taken me off it. I’ve been prescribed codeine since May/June. I really think they ought to give me something else. I will ask my rheumy about the Cymbalta. Thanks ☺️
If you've had a GI bleed from naproxen then its extremely unlikely that they would risk putting you on another NSAID. It would explain your omeprazole.
Gabapentin is the first line drug of choice for neuropathic pain, then pregablin (Lyrica). Some people benefit from it, others don't get on well with them. I personally do really well with pregabalin.
Cymbalta (brand name for duloxetine) can be really affective for fibro and nerve pain but it isn't a first line choice of drug and isn't without its side effects.
Some people do really well on it and others like me could hardly move for the terrible nausea and dizziness. Its one of those thing that what works for one won't work for another.
Have you been seen by or referred to a pain team? My pain consultant is brilliant. I can't tolerate codeine so I take oramorph (liquid morphine). I was concerned about addiction initially but he explained that I have a painful inflammatory condition that requires high level pain relief so as long as I am using the medication appropriately, which I am, then the body absorbs the pain relief to the level that it requires. There may be some level of tolerance over the years but I don't have an addictive personality and I'm on the same dose now that I was 4 years ago.
Its awful being in pain and I'm just like you, unable to take an antiinflammatory which I'd what is needed with inflammation pain.
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