Heart failure and kidney failure

[Rayella]

Hi,

A close friend of my be was diagnosed with lupus sle back in 2013, I think it had something to do with her pregnancy. Her health has been up and down since. She had another child recently and has been gravely ill ever since. I found out yesterday from one of her family members that she has heart failure and kidney failure. She is only 30. They said she needs a heart and kidney transplant, but at the moment they are working to try to get water off her heart and lungs, then get her on dialysis, the have had to put her into a drug induced coma, they said for a minimum of 3 days to a maximum of 7 days. It all seems so scary and I don't want to burden her family with my questions, but I am so worried it all seems so dire, can you come back from such a situation, her kids are so young. I just feel so helpless.

Please keeps her in your thoughts and prayers.

Ell xx

[suzannah16]

I am so sorry to hear about your friend, I hope all goes well for her. For an "invisible" illness lupus that most can't see it can have terrible effects on our bodies. XX

[Chanpreet_Walia LUPUS UK]

Hi Ell,

I am sorry to hear that your friend is very unwell at the moment, my thoughts are with you and your friend's family.

We published two booklets which I think you will find useful. The booklets discuss how lupus can affect the heart, lungs and kidneys in people with lupus.

'Lupus: The Heart & Lungs' factsheet: lupusuk.org.uk/wp-content/u...

'Lupus and the Kidneys' booklet: lupusuk.org.uk/wp-content/u...

It is important to bear in mind that lupus presents differently in everybody, therefore, no two people are likely to share the exact same experience.

If you are able, please keep us updated. Wishing you all the very best.

[Rayella in reply to Chanpreet_Walia]

Thank you so much for your replies. I spoke to her mother yesterday and she was super stressed out, which is really awful in itself as she's just recovered from a brain aneurysm and has very high blood pressure, she's looking after her disabled husband, severely autistic 25 year old daughter and 2 young grand children, I'm really worried for her, she has so much to deal with. I just hope the semi coma has the desired effect. Anyway sorry for the long story. Thank you so much for your replies xx

[Chanpreet_Walia LUPUS UK in reply to Rayella]

You're welcome.

We have LUPUS UK Contacts who you may like to chat with over the telephone. Most of our contacts have lupus themselves, they are not medically trained but are there to offer support and understanding. If you would like a contact to speak to, please email me at [e-mail] (your friend's mother may also find this useful too).

All the best

[Rayella in reply to Chanpreet_Walia]

God bless you xx

[Cal66]

Hi

I'm so sorry to read about your friend. I never really know what to say when i things like this, but it sounds that she is being well cared for by the hospital, the coma may give her body time to heal.

I know that you are extremely worried about your friend, but do try to take care of yourself and don't overdo things incase it makes you ill & then you would n't be able to help her or her family when she comes out of the coma.

I will say an extra prayer for you both.

[Natura]

Will pray for your friend and family.,,so sorry.