Can you tell me how many of you on the forum are still not under control despite being on lots of meds?
My daughter has blood tests every week and seems to be going from bad to worse,now her nurse is trying to work out who she should see next,she sees a dermy ,cardiologist,kidney and neurologist,now no one knows why she has and has had for some time swelling on the. brain and spinal cord ,scarring on the kidneys and heart,severe water retention severe skin sores,high inflammation markers and many many more problems.
She has never seen a rhumey and has been told that she needs to see someone who can deal with things as a whole.
The nurse she sees every week is trying to get some answers ,as to who she needs to see next as her skin and bloodshed are getting worse not better.
Any idea's would be grateful,Sandy