Is this a typical lupus rash/anyone had this?

[Comeonpeeps]

As the title says

Thanks and Merry Christmas. And can you only add one picture??

[katidid]

It’s not the infamous malar rash, but the literature does cite red raised bumps. Run it by a dermatologist and track it. Very hard to tell - there are so many causes of dermatitis out there.

Hope you get some answers

[Comeonpeeps in reply to katidid]

Sorry for the delay, festivities got in the way! Thanks for the reply.

[Krazykat26]

I agree with katidid. I have cutaneous lupus and I get different types of rash so if u could give some more details I might be able to help. Have u got the rash anywhere else or is that the only area? Does it itch? Is it hot? How do u feel in yourself? Any change in soap, washing powder? Have u been diagnosed with lupus? Are u putting anything on it? Xx

[Comeonpeeps in reply to Krazykat26]

Thanks for reply. I had another one on the other arm but it was spots in the shape of a 'C' I can't figure out how to put an additional photo on! They were slightly itchy, I actually came down with a cold the day after. Yeah SCLE. Just wondered if anyone else with lupus got similar?

[Krazykat26 in reply to Comeonpeeps]

Ahhhh the dreaded SCLE!! Have u got a dermatologist? Do u put anything on the rash? I have Dermol lotion that I wash in and when my rash rears up I put it on spots..it's used for dematitis and eczema. The rashes vary in severity and I have topical steroids to apply when needed..I have different strengths of ointment..the one I find best is betamethasone. Definitely keep pics of any skin episodes to show to dermy because the time between appointments is usually quite long..keep a record of what's happening. At the beginning of my SCLE journey I did apply aloe Vera gel to the spots which gave some relief. Cools them down and stops them itching xx

[Comeonpeeps in reply to Krazykat26]

Thank you very much for the help. To be honest I don't really have a big issue with my skin unless I've been in the sun. But my all the funny marks on my skin are unexplainable. The doc said they looked like bites! I just put sudocrem on them to stop them getting worse and to stop any infection. I feel ill today, I'm sure it's from the 3 glasses of wine I had yesterday, I just can't tolerate alcohol. I'll do another post with the rash on my other arm. Thanks again.

[Krazykat26 in reply to Comeonpeeps]

Yeah it could be that you're unwell at the moment..docs will always say bites or changes in washing powder etc ..one of my rashes was wrongly diagnosed as scabies!!

The pic that u have shown here does look like some rashes that I have had and still got. That raised red area and then what looks like tiny blister within it is very like the current rash on my back n upper arms which isn't giving me too many problems at the moment. Are u taking any medication? Rashes can be a side effect for many drugs and I'm on loads. If it does get itchy I take a piriton and that usually helps xx

[Comeonpeeps in reply to Krazykat26]

Oh is it?! Glad you're not having too many problems. Yeah they were slightly blistered, I'm sure that doesn't happen with bites?!

I'm on hydroxychloroquine. Had these type rashes way before the start of these though.

[Krazykat26 in reply to Comeonpeeps]

Well I would say keep doing what you're doing now and keep a close eye on the rest of your body..record any changes n take photos to show dermy. I am very sensitive to uv rays..started flaring last Feb and we couldn't work out why..until I read that florescent lights and led lights are bad as well..I had recently moved house and we had a five foot florescent tube light in the kitchen..ah-ha there was the culprit!! Got a lamp in there now. As I understand it subacute cutaneous..means it's under the skin always n then rears up when inflammation occurs anywhere in the body..it's how we show our symptoms. Xx

[Comeonpeeps in reply to Krazykat26]

Yeah lights affect me too and sometimes just daylight! How else does SCLE affect you?

[Krazykat26 in reply to Comeonpeeps]

I don't get the classic butterfly rash..I get random rashes over everywhere else on my body..sometimes it's like chicken pox..other times it's more discoid in shape..bigger areas with a dark ring around them. When I'm flaring I get very fatigued and my joints hurt. I get ulcers on the soles of my feet n the palms of my hands..it's very painful and I tend to get quite depressed when it's really bad.

I have to cover up under all kinds of light and I usually can't wear suncream coz my skin says get away with that s**t!! It just makes my skin even angrier!! I've been on steroids for most of this year n I don't seem to be able to come off them currently but now I'm on immune suppressant so I'm hoping they work. Everyday it's skin..and it's everywhere!!! U got to keep your eye on it..it's our biggest organ n it's what holds us together and protects us from infection.

It's also a good sign that something's up within..so it's an indicator if things aren't right. Xx

[Comeonpeeps in reply to Krazykat26]

It sounds like my skin problems are mild compared to yours.

Do you get raynaud's or blood splinters in your nails/hemorrhage in your nail folds? I do, and mouth/nose ulcers.

[Krazykat26 in reply to Comeonpeeps]

No mouth or nose ulcers thankfully..my hands n feet do go blue n white and I have mentioned it to dermy but I've had so many other things going on this year..it's something that I've had to put on the back burner..I do prefer to be cooler..hands n feet get hot so not sure if Raynaud's or the other one..not sure I can spell it but I'll have a go.. erythromelalgia..that's the one..good old spellcheck!!

No bleeding fingernails but the tips of my fingers crack n split. Ouch!!! 🤪Xx

[Comeonpeeps in reply to Krazykat26]

It sounds like you do have Raynaud's and..... the other one!!

The thing that baffles me is that, and information is contradictory, but some I've read implies that SCLE only affects the skin, but I disagree. I believe that it affects the immune system. What do you think to that? You and I (and many others on here) obviously suffer with more than just skin complaints.

[Comeonpeeps in reply to Comeonpeeps]

Sorry, I didn't reply to one of your posts. I have seen a dermatologist and had a skin biopsy from the side of my face, but it came back inconclusive. Also that there were too many white blood cells there.

It was photobiology at Salford that confirmed the SCLE.

[Krazykat26 in reply to Comeonpeeps]

Oh yeah I totally agree.. what's going on inside n it's our skin that shows it on the outside..it's all still immune system giving symptoms..I suppose the good thing is that it shows itself n when we learn to pick up the signs it can give indications that things aren't right within. I've got nerve pain n bad circulation..can't walk..it still affects other systems.. skeleton etc..my life has totally changed.. definitely new challenges every day..I get fatigue..joint pains..at times I can't weight bear on my feet..n then my hands go all spazy..then I'm a mess..emotional crap comes in...da-de-da!! The list goes on and on!! I'm so glad to connect with u..it's good to talk to u xx

[Comeonpeeps in reply to Krazykat26]

I agree, great to talk to you too it really is. I am the same as you, but I also have ankylosing spondylitis and some symptoms are very similar, so sometimes it can be difficult to establish which is which. What area are you from? I'm in East Cheshire.

[Krazykat26 in reply to Comeonpeeps]

I'm in Northamptonshire. Yes again..this lupus business is right tricky ..every day..kinda chicken n egg scenario..so many questions n no concrete answers ..so we have to learn to get some kind of handle on it..it's like riding the wild wolf..n even when its a bit subdued..I've learnt to understand that my wolf is always lurking in the periphery!! This is a mad mad illness..so I'm trying to embrace my uninvited wolf companion..it's well tricky though n I've had loads of crap this last year. Xx

[Comeonpeeps in reply to Krazykat26]

Yes the wolf is always lurking around the corner!

I'm sorry you've had a bad year.

[Krazykat26 in reply to Comeonpeeps]

Not so bad..challenging deffo but I've learnt a lot..not much else to do when it's 'lazy time's..do u get the fatigue..brain fog..some days nothing works?

[Comeonpeeps in reply to Krazykat26]

Yes fatigue plays a major part in my life. Can't even go for a walk without suffering with pain and fatigue

[Paul_Howard Partner LUPUS UK]

Hi Comeonpeeps ,

I'm sorry but we do not have any medically qualified staff here so we cannot advise you about your rash. Have you shown it to your doctor?

Lupus rashes can vary a lot in presentation. If you want more information about skin involvement in lupus, please take a look at our booklet here - lupusuk.org.uk/wp-content/u...

[maggielee]

Hey cp just a quick note before work... Yes I have SCLE & sjogrens which sometimes goes hand in hand....will write more later...lots to learn about this & not many with scle - it means your skin is being attacked, hydroxy helped me greatly to start & avoiding uv... ML