Does anyone else just feel like their life is just like one long vicious cycle of pain, tiredness and exhaustion!!?
I get up every morning and it’s just the same old s***, can’t/ don’t want to get in the shower cos I’m so stiff and in pain, then it’s a short walk to take don to school, killer on my hips now it’s cold again.
Then I spend the rest of the day with my 2 yr old just trying to stay awake til it’s time to collect my son.
Then struggle to make a meal for t or just do the kids t and dad will have to fend for himself when he gets home, then struggle to bath kids so usually have to wait for dad to get home to do it. Get into bed at 7pm when kids go up read if I’m not either too drugged up on pain relief or have a migraine or just soooo tired can’t physically stay awake. Am asleep very early anyway and then I wake up for the whole s*** cycle to start all over again!
I’m on so many meds and quite a high dose of immunosuppressants so there’s not really anywhere else to go from here so I kind of think this is it for me this is just how life will be.
At the moment I only have to be laid, sat or stood still for about 10 mins or so and am so stiff.
People really don’t realise that this is how restricted our lives actually are, I can’t even just pop out and do a food shop, I may as well run a marathon!
Met some friends at soft play this morning and I was just sat looking at the soft mats thinking I could actually just lay down on them right now in here and go to sleep, no joke! I always say to people I could literally go lay out on the pavement and go to sleep and they just laugh like I’m joking!
Anyway that’s my moan sorry!