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LUPUS UK
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Update on rash 😬

Finally had gp appointment today . I had 3 issues to discuss , the rash , pain and swelling in joints , occipital pain and headaches. The rash had actually died down a bit over week though still itchy , he thinks it is due to photosensitivity as rash is on arms and stops at tee shirt line , a new problem for me . The joint swelling and pain and occipital pain could be a flare related to bout of food poisoning 8-9 weeks ago , maybe it triggered photosensitivity as well ?

Gp prescribed a stronger hydrocortisone cream to use over 2 weeks , i have to use a moisturising sun screen, and an anti inflammatory that i have used before thats easier on my stomach. He also wants me to contact the rheumy nurse and discuss this with her as well . She might be able to get physio quicker for my neck . Im due rituximab again in December, it can’t come quick enough at the moment as I feel as if im heading down hill again.

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🤞🤞🤞 hoping the cream does the business and you see the phsyio quickly. That Campylobacter can knock you sideways for a while, be well xxx

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Thanks eekt , it’s hard to know for definite if the food poisoning was the cause but the timeline would fit with it !

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Yes I got a bad food poisoning way back and a huge flare, hope you are feeling some relief soon. Lou xx

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Thats interesting louise , maybe it could be the cause then, I hope you are feeling good now!

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I have a history of gut issues and flares as does other family members, settles in time and with my meds in place . More than one AI and vasculitis consultant have advised probiotics. I take them daily now. xx

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I have considered probiotics in the past but i take so many tablets the thought of more did no appeal . I probably should reconsider now , what do you take , if you don’t mind me asking ?

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I,ve tried and tested a lot but settled on Symprove. Its not cheap but I do not drink, smoke , so hey my one treat, lol. xx

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Thanks louise, I don’t drink or smoke either, i do have a terrible sweet tooth though 🍰 . I will check out symprove tomorrow , i have IBS which i have under reasonable control so it will be of benefit there too . Best wishes xx

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Oh I love my choc the darker the better. xxxx

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Hi louise, i had a hunt this morning for symprove, no one had heard of it ! Did you buy it on line or is there a shop that stocks it ?

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Yes online they have their own website, can talk to them for further info too. I first heard about them re aritcles in health magazines. xx

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Thanks louise 👍

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Forgot to say you get the 9 to 12 bottles free every thime. xx

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Good to know 👍

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Only for the flavanols 🤗 🤩😚:

‘Cocoa flavanols help maintain endothelium-dependent vasodilation, which contributes to normal blood flow’

nutrition.org.uk/healthyliv...

😍 😘 xxx

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At last some good news, thanks eektxx

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There's live yoghurt, kefir, sauerkraut (and beer) too! My meal times are simple but happy 😄 🤗 🤩 xxx

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I like the sound of the chocolate 🤗

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Chocolate suaerkraut's pretty good if you've had enough beer ! 😋 xxx

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Maybe in my chilli , but chocolate sauerkraut might be a step too far 🤪

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Hi weathervane, glad you've had a good consultation with your GP and he's given you cream for that rash. The food poisoning could well have triggered the photosensitive th as it can trigger flares for us!. Looks like that's what you've got now and sorry your Retuximab isn't due till Dec!. Long time to struggle so I hope the Rheumy nurse can help too!.

I had a good consultation with my new GP again. He is easy to talk to. My blood glucose was normal so no diabetes thank fully. Low blood sugar is sorted with diet now , I'd cut too much down!. He wants me to talk to Rhdumy about adrenal insufficiency and I've got my appt on 23/10 so not long!.

Hope your son is improving too. Stress can play a big part in lots of illnesses. I showed my new GP my current list of symptoms and he said stress!. Jury is still out on him!.

Hope you feel better soon. Xx

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Thanks misty, the gp was extra attentive as he had a student with him . Im glad your blood sugar is normal again , so your problems were due adrenal insufficiency 🧐 will that be hard to control ? Hope your gp will prove to be a keeper as we are so dependent on them for help , best wishes xxx

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Thanks weathervane for your good wishes. I don't know about the adrenal insufficiency until I speak to my Rheumy about it next week. I'm doing my notes and a diary of my symptoms as I need his advice. Do hope the new cream helps. Fingers tightly crossed. Xx

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Good luck misty , it’s nerve racking trying to remember everything so notes and a diary are a great plan , i hope all goes well and you get answers . Im keeping everything crossed for you, please let us know how you get on xxx

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Thanks so much weathervane, it's worse than a job interview don't you think as it's our lives!. A lot rests on this as I've not seen him in 10 months!. I will keep you posted and you take care too. Did I see your having the flu jab this werk? I'm having mine on Friday!. Dread it!. Xx

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No word about flu jab yet , with everything I forgot to ask gp ☹️, i have a bit of a cold so maybe its as well I haven’t heard , best wishes xx

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You can't have it weathervane if you've got a cold. Be better soon. Xx

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Good luck with all misty , speak again soon xx

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Thanks so much weathervane, I'll let u know. Take careXx

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It may help you to take a good probiotic I used to get loads of tummy bugs before realising they help x

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Thanks Shorthouse , im going to check out probiotics tomorrow and get started on one . I don’t get many tummy bugs but i am on rituximab so my immune system is compromised unfortunately ☹️

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at least you have some answers. how is the wbc? still ok?

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True answers make a difference! I haven’t had my bloods checked for a while so don’t know if wbc is good or bad . Will see if will check it when in for flu injection. How are you keeping this week , I hope things are good xx

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Using the stronger hydrocortisone has made a difference already! Gp said to use it for 2 weeks, hopefully I won’t need to as it does thin the skin . I put it on and let it dry for 1/2 an hour then i put on the moisturising sun screen, i put on diprobase later in the day .

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