Are sores on roof of mouth and frequent sore thro... - LUPUS UK

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Are sores on roof of mouth and frequent sore throat’s common?

Nvrenfhorses2 profile image
12 Replies

Hello, I have had blister (solid red) back of throat before with sore throat that refused to go away for 3 months. I felt great for a month or two and it’s back but I have red brush burn looking spots on the roof of my mouth. Has anyone experienced this? Thank you.

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DJK99 profile image
DJK99

Hello - yes, autumn last year into winter and pre Spring this year (and off and on most winters or periods of high stress) I had recurrent palate mouth sores similar to yours. V painful on eating anything scratchy eh?! I ate a lot of healthy soups and yoghurt plus anything as soft as possible when they were at their worst. In the winter I had a long cough/cold/chest infection and eventually got antibiotics but in earlier bouts of palate sores gp prescribed steroid mouth wash pills that you dissolve and swirl. I didn’t take them that time as they’d improved a little by time hot appt(!) and I don’t react well to steroids, but keep the meds on standby as required. My sores were a cluster of white/yellow dots of varying size surrounded by bright red in same area as yours. Wld post pic but can’t add to responses. Just seems part of a flare and I get them when quite rundown. I’d just moved (was hellish run up) when they started and took months of issues at new home that kept me stressed and not sleeping well so think that’s what brought them on. I’d get to your GP maybe and they’ll prob prescribe the oral steroid wash pills plus maybe antibiotics. I’d tell yr rheumy too/show or email pics when next speak. Are your blood tests showing low neutrophils etc? Mine were quite low all that time. I take tons of vits ie 1000mg of vit c slow release plus high vit b complex, high vit d (via presc), plus lots of others which I know help, and drink 2litres of water a day and have v healthy diet of veg/fruit/fish/brown rice/quinoa etc. All seems to help... Hope that did - and you get some relief soon. Take care, D

Nvrenfhorses2 profile image
Nvrenfhorses2 in reply to DJK99

Thank you so much, you are spot on about the stress. I had noticed I was feeling a bit run down, headaches, not sleeping... I was surprised because I wasn’t working out or running ragged , or so I thought Thanks to Covid. I’ve been caring for my brother with cancer, and juggling family stuff, I was terrified having thanksgiving with my brother so I guess I was under a lot of stress. I take a powder vitamin c, but stopped everything else because my kidney and liver function were a bit wacky and we thought it may have been from all my supplements. I will slowly add back the basics. Good point! My blood work usually comes back normal... even in a horrible flare where I can barely move. I wanted to ck with you all before my rhummy, I feel funny telling her every little symptom! But thank you for the great advice I was on a sugar bender so that didn’t help🙄. Yes soup it is for now. I really appreciate your advice and all the support from this group!

DJK99 profile image
DJK99 in reply to Nvrenfhorses2

Ah well that all makes sense then. Well done on your caring role... I know it well as had mum with me for her last mths. Working full time and caring that closely is intense, very upsetting and stressful... you'll definitely be run down. I understand reaching for the sugar... ;) but was going to say, I stay well away from rubbish food including sugary treats as they really do me no good at all, bringing on inflammation, nausea, mood swings and spots.. etc etc. But I know they're nice in times of high stress/exhaustion. I treat myself with cantaloup melon and strawberries etc..maybe with live coconut yog and a drizzle of posh honey - that helps my mood and sugar cravings! And re telling your rheumy every little thing - I know what you mean! but - it's very important you do. I list all my stuff pre (now telephone) consults and email it with photo's just before so he's got it to hand. Seems to help... if they don't have all your info they can't know how to treat you as well, and keep up on any changes etc. Lupus UK have a pamphlet to download called something like how to get the most from your appointments... and I always read everywhere it's important to list everything and take photos etc.. even when you see them in person - bring it on!! Anyway, hope you improve soon, please take care of yourself as it's easy to forget your needs when caring for others... x

Nvrenfhorses2 profile image
Nvrenfhorses2 in reply to DJK99

I’m so sorry about your mom . That must have been incredibly difficult time for you. Most of us never look back and think...wow how did I manage? We just keep going, don’t lament, and just make it through to the other side. Funny you mentioned coconut yogurt... that was my dinner last night with some raspberries and cashews. Thank you again for your sage advice. I remember telling my daughter...who has Hoshimotos... “You need to tell your doctor that! “ lol Although I feel like a hypochondriac ...even though I never talk about my symptoms, probably because there are so many! I’m remembering now I had other symptoms I didn’t think related to my autoimmune until now! But I really appreciate your advise, I don’t feel manic and I will call my rhummy today! We’re having our first real snowfall so I may go see my horses today. They warm my 💜and soul . Stay safe and I hope you 😊are feeling well today!

Nvrenfhorses2 profile image
Nvrenfhorses2 in reply to DJK99

Thank you so much for your response. Been going through two bad flares almost back to back. After reading your post it seems like we’re on the same page with vitamin c and such. I did see my GP but he was no help at all and said he wouldn’t give me antibiotics ( I have Lyme disease but he thinks I’m like a closet druggy for antibiotics. I was like nooooo, I’m just worried I have a walking pneumonia with chronic sore throats! Idiot! My husband complained tobhim that he was disappointed with my care and treatment. He could have at least told me to gargle with salt water for $50 copay. Lol So I’m switching GPS and have an apt with my rheumatologist Friday. Thank you for sharing and lists to me complain 🙄 be safe out there!

Chanpreet_Walia profile image
Chanpreet_WaliaLUPUS UK

Hi Nvrenfhorses2,

Oral (mouth) and nasal (nose) ulcers are one of the most common features of lupus occurring in around 45% of people who have SLE. We published a blog article on coping with oral and nasal ulcers which I hope you find helpful to read at lupusuk.org.uk/coping-with-...

Nvrenfhorses2 profile image
Nvrenfhorses2 in reply to Chanpreet_Walia

Thank you so very much, I will look at the article. After suffering for years with undiagnosed Lyme disease, ( I did receive a diagnosis last year) I believe my body has rebelled. The symptoms are so similar. But I have definite lupus symptoms with no positive ana. My rheumatologist is amazing, im blessed to have a caring doctor😊 and this forum! Thank you!

Chanpreet_Walia profile image
Chanpreet_WaliaLUPUS UK in reply to Nvrenfhorses2

You're welcome.

dsDNA antibodies are specific to lupus, they are present in around 60% of lupus patients and they are not typically seen in any other condition or in healthy population. An ANA test only confirms if a person has an autoimmune disorder and can be 'negative' in around 5% of people with lupus. Learn more at lupusuk.org.uk/getting-diag...

Best wishes,

Chanpreet

Heatheric profile image
Heatheric

Hi there Nvrenfhorses2, I've had that and also frequent bouts of oral thrush - I think it's connected with me. When I get the thrush the liquid drops don't seem to get rid of it so a couple of times I've had to have antibiotics. Now I mouthwash with Corsodyl every night and if it does break through I use Daktarin gel - put it on my tongue then spread around the roof of my mouth. That does seem to keep it at bay, though I do have to be careful with crispy food which is a shame as I love crisps but I have to be really careful that I don't scratch my mouth. Good luck with it, prevention is better than getting that bad so try a preventative strategy when you do get sorted. Heather

Nvrenfhorses2 profile image
Nvrenfhorses2 in reply to Heatheric

Thank you so much Heather. You are right, I was on an antibiotic for a UTI and I think that made it worse. Prevention is the key. I’ve had two major flares back to back and it’s been a lot. But I did have some sweet and spicy Thai chips today for the first time in months! Thank you so much! Stay safe out there!💜

Nvrenfhorses2 profile image
Nvrenfhorses2

Thank you so much! Yes, this is becoming a reoccurring issue🙄 thank you for your great advice. It funny because I’m on an antibiotic for UTI, so I thought this was making my mouth dry. But this morning I work with very swollen tissue under my tongue and tiny cancer sores. I like you idea for preventative measures! I knew I was run down... I will definitely look into the mouth wash. I like crisps/chips that are sweet and spicy Thai! Won’t be enjoying those for a long time! Thank you so much, hugs to you!

BK47 profile image
BK47

Sadly yes! I often get ulcers and sore mouth/throat. I use a gel which dries on the ulcer and eases the discomfort.At the moment I’m feeling really low due to pain in every joint and awful fatigue. My legs feel as if I have pulled muscles so I’m limping when walking.

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