Hi all , im posting today about my son who is 25 , he has been under going tests because of shoulder pain and swelling , large plaque on upper arm with loss of tissue and swollen areas under arm and on chest . He was referred to rheumatology and has had blood tests , mri and ultra sound scans , they called in dermatology who initially diagnosed scleroderma but wanted to do a biopsy and more bloods . He was back at dermatology for the results today and he has be given a new diagnosis of lupus profundus which i have never heard of and can only find limited info about it . He will be starting on the same proposed treatment, methotrexate and steroid infusions with an addition of plaquenil as using it in conjunction with methotrexate might mean he can be on a lower dose. I am a bit gutted as I feel its my fault that he has an autoimmune disease as i have Sjögrens , I just need to get my head round it all .
I would be grateful if anyone could give me info about this type of lupus and if they have had similar treatment. My son is very quiet about it , he justs want to get on with the treatment and not talk about it . Im the opposite so if anyone has info please bring it on .