Weight Loss Update

[Meg52]

A couple of months ago I wrote about unexplained weight loss. The hospital have started looking into it with a multi disciplinary approach. I was fortunate to see the Rheumatologist and Respiratory consultants at the same appointment. They are arranging a stomach scan, chest scan and another full pulmonary lung function test before my next Respiratory clinic appointment in Feb. I’ve lost 11kg since January. I was also told I have mitral regurgitation, aortic thickening and left ventricle thickening.

A video swallowing test was also done which showed that my swallow is reduced and liquids are entering my airways. They are starting to think that the swallowing problems are exacerbating my cough and have prescribed a thickener for fluids and double swallowing. They also think that perhaps my lungs are getting slightly worse which is causing my body to use extra energy and loose body weight. I think the stomach scan is just a precautionary check because of the weight loss.

They seem to be doing their very best to help sort it.

Sorry I haven’t been on much lately but I’ve not felt well enough. I will try and participate more.

Happy Christmas and the best health possible to everyone xxx

[KayHimm]

Thank you for updating us, Meg52. We were all concerned about your weight loss. It does sound like your doctors are trying to get to the bottom of it. You have a lot to contend with.

Hope you have answers and successful treatment soon.

K

[Meg52 in reply to KayHimm]

Thank you KayHimm. The low gas transfer and lack of energy just makes everything so difficult. I feel as if they are taking it seriously so hopefully I will start improving soon. xxx

[KayHimm in reply to Meg52]

Yes, you must be so fatigued. Improvement soon, I hope! Keep us posted. Xk

[Hidden]

Meg, I’m terribly sorry you are going through all of this. I’m glad the doctors are doing to much to get on top of this.

🙏Have yourself a Merry Christmas and I pray for you great health too.

[Meg52 in reply to Hidden]

Thank you for your good wishes. Happy Christmas xx

[Hidden in reply to Meg52]

Certainly. Ditto!

[Oshgosh]

I’m so sorry you’re going through the mill like this. At least you see the consultants together,it saves so much time. They can commune directly instead of by email.

They do seem to be taking it Seriously.

Have you seen a dietcan,? Perhaps you would benefit from some of the high calorie drinks.

Thinking about you

[Lupiknits]

I’m so sorry you have all this to deal with

[Meg52 in reply to Lupiknits]

Thank you so much, people are so kind on this forum, especially when everyone has their own problems to deal with.

Meg xx

[Meg52]

No I haven’t seen a dietitian, but the hospital might suggest it. I have wondered about the high calorie drinks, they might help keep some weight on.

Thanks very much, I hope have a lovely Christmas. Meg xx

[Putloo]

Hi dear, i lost about almost 10kg in a span of 2 months last dec-jan. Got all possible scans and biopsy. Got finally myself SLE-vesculities. My kidneys were not working properly. After a year of continuous check and medication, I m doing better. Though I have not gained weight but I definitely have better strength.

So, all the best my friend. U will soon get the appropriate answers to your questions. Take care of yourself...

Merry Christmas and a happy new

[Meg52 in reply to Putloo]

That’s a lot of weight to lose in such a short time, you must have felt dreadfully tired. I’m sorry to hear about your kidneys but I’m pleased to hear you’re getting your strength back.

If I can get some strength back I feel that I could mentally cope with most things.

So thank you for your positive message. Wishing you a happy Christmas and New Year.

Meg xx

[svfarmer]

So sorry to hear of your health problems hope it all gets sorted for you soon - hope you have a good Christmas 🎄 xx

[Meg52 in reply to svfarmer]

Thank you for your kind reply. I hope you get your X-ray and some relief soon.

Meg xx