Light sensitive ??

[Angelamarston1963]

Hi I posted a couple of days ago about a reaction I had after sitting out in the sun for 10minutes (instant overwhelming fatigue and increased joint pain ) today I’ve sat in the sun with sun screen slapped on and fortunately didn’t have the same experience BUT both my feet became very itchy , swollen and odd rash - is this something that you’ve experience ???

[Hidden]

Yes I get this too, my feet always look exactly like that and the itching is unbearable!! I try to stay out of the direct sun and cover my feet up now. My Dr says it's caused by the condition x

[MEW53]

I too have issues with the sun.

I always cover up, especially the feet, always wear socks with trousers, went for a walk wearing a light jacket the other day, a neighbour thought I was mad, I said I can’t take the sun. I use factor 50, make sure exposed areas like hands, feet, face and neck are protected and wear a hat, I have a big floppy one which does a good job. Think its the medication for Scleroderma that causes mine.

[Treetop33]

Yes - not so much rashes these days (though I used to before I was diagnosed) but pain and exhaustion. I wear factor 50, cover up and don't go out when it's blazing hot.

[Kate-L]

Hi Angelamarston1963, I suffer with SLE and about six months after my diagnosis I became light sensitive. Although I love the sun, I'm afraid it absolutely hates me - sitting out in the sun for just a short while, even with suncream still causes redness and pain. When I go out in the sun I always use Factor 50+ sun lotion as well as lip sunscreen. I always wear long sleeves and a hat - I can't wear cropped trousers/sandals as my legs & feet are affected which is a real nuisance. It really is best to avoid sunbathing, unless you have a large shady brolly and keep covered when you are out & about in the sun. OK, it is a nuisance however it will keep you safe. Lupus causes us enough problems, we don't want to add to them!

[Angelamarston1963]

It’s really strange as I’ve been unwell since October and when the dermatologist asked if I had any skin reaction in sunlight I said no (I’m fair skinned so have always worn high factor sunscreen and sat in the shade ) but obviously we haven’t had much sun over the winter months and one the two occasion when we have i’ve Had a reaction ! Typical as this with the fact that my ANA was negative lead him to rule out lupus . I’m seeing my GP next week so will mention these new symptoms to him . I’m convinced I have lupus as I have all of the other symptoms . I suspose I will just have to wait for my bloods to catch up with my body !

[chrisj]

I burn easily so I dont sit in the sun any more, down to lupus. Once needed an arm wrapped up it was so red and sore, since then I've avoided sitting in it and just take short walks making sure I'm covered up

Cant cope with bright light either even when the sun isnt out. I have reaction lenses in my glasses to deal with that

[Ianrussell69]

Did you put sun screen on your feet it’s common to have uv sensitive with lupus mctd

[Angelamarston1963]

No I didn’t , my feet were in the shade but I will next time 😂