Worried Lupie: Hi have got systemic lupus and I am... - LUPUS UK

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Worried Lupie

boggis profile image
5 Replies

Hi have got systemic lupus and I am receiving ESA and DLA. I just got a form for capability for work. I am seeing professor T Vyse at guys hospital. I have been trying for day's to get hold of him as I need a support letter. I'm really not good at forms and I live on my own I have no support. I need a letter from doctor's but he is new and doesn't really no my medical history. Any help I would be grateful

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boggis profile image
boggis
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5 Replies

Hi there. I am not sure that you need a support letter for this purpose? I only really know about PIP but I think it’s important to be able to evidence that you have the conditions you are describing - in which case an older letter listing clinically diagnosed Lupus would really help. Beyond that, as far as I’m aware, only the impact of your health conditions will determine whether you are successful or not. So a recent clinical letter listing Lupus and preferably describing your reported symptoms and confirming their impact on you should be enough. So a copy of a recent letter from a GP or physio or occupational therapist or dermatologist might also help.

I have only seen my new rheumatologist once last year so this is all I used to apply. However unfortunately I didn’t explain the impact of this diagnosed rheumatic disease on my everyday life properly so am now having to work this out for an appeal tribunal in a few weeks time. You could also try and get help filling in the form from Welfare Rights at your council or CAB?

Best of luck.

boggis profile image
boggis in reply to

Thank you Twitchytoes

Lupymo profile image
Lupymo

Hi boggis, so this is to review your eligibility for the support group of esa or to confirm limited capability and stay on esa? Either way and formula or pip appeals etc, look up benefits and work website, sorry I don’t have the link. There’s some free info available but there’s an annual payment of around £18 with excellent help and info to guid you through the torturous DPW system. It’s run by welfare rights officers I think and well worth the spend if you can manage it.

Good luck

charm81 profile image
charm81

If you're on Facebook search the group: esa/dla/pip advice and support uk only.

They'll be people who can relate. In ny experience with the WCA I don't recall a letter from a doctor being necessary. You are the best person to comment on how you feel and how your condition limits your ability to work.

As advised though letters from appointment visits that list conditions or any hospital discharge notes etc will be of support.

Best wishes.

Buffy14 profile image
Buffy14

Contact welfare rights at your local council they will do the forms for you and send forms to your doctor's for them to fill in .

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