Please provide your feedback for this research looking at lupus and employment - Managers in large companies

[Paul_Howard]

This post is for the discussion of one of the next important questions in the research of lupus and employment. For more background about this, please read the post here - healthunlocked.com/lupusuk/...

1.What are the skills, attitudes and knowledge of managers in large companies towards people with relapsing and remitting (fluctuating) invisible chronic illnesses?

•We are trying to find out what managers in large companies (where there is more chance of seeing someone with an illness like this) know about managing someone at work with an illness that comes and goes or fluctuates day to day. What are their ideas about what they can do to help?

•Do they feel sympathetic and helpful towards people with an illness that seems to get unpredictably better and worse?

•What are the difficulties it poses for their department/organisation?

•What specific changes in the way people work have they made/ could imagine making for someone with a fluctuating invisible chronic illness?

Other questions will flow from this;

2.What do people in HR Departments (Human Resources/ Personnel) in large organisations know about fluctuating illness:

•The Equality Act and its role in supporting people with fluctuating illness.

•What sort of adjustments/ reasonable adjustments can be made /would they make for people with chronic illness?

•Are there any jobs they think people with such an illness could not do?

•What actions would they take?

3.Occupational Health Clinicians (nurses and doctors) in the private sector, universities and independent occupational health providers.

What are the skills, knowledge and attitudes of occupational health professionals towards people with fluctuating, invisible, incurable chronic illness?

•Do they recognise any special characteristics of these illnesses?

•Have they treated anybody with these illnesses?

•Do they refer on to other occupational health departments if they have not heard of an illness or treated someone with that illness or do they have other ways of managing this?

•What sort of adjustments/ reasonable adjustments can be made /would they make for people with chronic illness?

•Are there any jobs they think people with such an illness could not do?

•What actions would they take?

4. Doctors and nurses who care for people with lupus.

•Do they think that work is important for people with lupus?

•What adjustments would they recommend for people with lupus?

•What are the circumstances in which they would recommend medical retirement for people with lupus?

•What sorts of work or patterns of work are particularly bad for people with lupus?

•For even the people with most severe lupus, do they think that a small amount of appropriate work is helpful for health?

•What helps people to stay in work with lupus?

Please share your feedback in the comments below or if you would prefer not to post a comment below, you can email your feedback to [e-mail]