Hurt All Over: Good Sunday Morning Y'all! This... - LUPUS UK

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Hurt All Over

Tiras profile image
19 Replies

Good Sunday Morning Y'all!

This cold weather is taking a toll on me! Due to lupus every joint and mussel in my body hurts this morning!

The Awful headache to go with it!

Have you ever heard it even hurts to blink your eyes, well that is me this morning!

Oh, and I can not get warm, sitting close to the fireplace with a cup of coffee!

Wishing Everyone A Good,Safe, & Blessed Day!

Don't forget to attend the church of your choice today!

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Tiras profile image
Tiras
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19 Replies
Ianrussell69 profile image
Ianrussell69

Sorry you are having a grotty time and the headaches you describe really floor me and bring on the fatigue keep warm buddy

Tiras profile image
Tiras in reply toIanrussell69

I will try to stay warm, got church today so I will be in and out. We have a winter storm watch here for tonight!

You take care Also!

Barbarajeand profile image
Barbarajeand

Hi Tiras....i feel your pain. I am also having a hard time staying warm. I had to get groceries and the store was cold and my finger tips turned white....my Raynaud's seems to be getting worse. I even kept my gloves on inside the store...didn't help. Hope your headache gets better....they wear me out! Our temperature at night here has been around 8 or 9 at night. Brrrr! Love your fireplace.

Tiras profile image
Tiras in reply toBarbarajeand

I hope you get some relief soon also!

I'm in Alabama and we have been in the low teens, we have had the coldest weather here, in over 5 years!

If they is not enough problems, I have to go barefoot due to lupus skin issues on my feet especially my right foot!

Barbarajeand profile image
Barbarajeand

Sorry about your feet...what type of skin issues do you suffer from? Very Cold here in Kansas as well!

Tiras profile image
Tiras in reply toBarbarajeand

My skin is so thin an tender, shoes will rub blisters, and raw spots.

Barbarajeand profile image
Barbarajeand

Oh...so sorry. Do they know why?

Tiras profile image
Tiras in reply toBarbarajeand

Yes, the doctors say it is a combination of lupus and medication. It is not only my feet, it is all of my skin. I can literally tear my skin with my fingernail, and then it will bleed like crazy for a few minutes. Wash the blood off and you can barely see a scratch!?

Barbarajeand profile image
Barbarajeand in reply toTiras

On my.....so sorry that you have to deal with that. Does it cause blisters elsewhere as well? My skin is very sensitive too....so many rashes!!

Tiras profile image
Tiras in reply toBarbarajeand

Yes, I can and have gotten rashes/blisters from head to toe and everywhere in between. Even in unmentionable areas, if you get my drift?

Barbarajeand profile image
Barbarajeand in reply toTiras

Yes..I do know what you mean. I have experienced the same. It was quite an experience for me...in the unmentionable area! I was diagnosed with lupus and not long after experiencing some devaststing stress those blisters appeared! I found s very good doctor who treated me and told me it was lupus related. Thank you for sharing that with me...I dont feel so alone now.

Bmagrl profile image
Bmagrl

Yep, the cold has been brutal for me too. My joints are not enjoying it at all! Not being able to stay warm has become one of my issues this winter. My body temp is impossible to control. It will be 80+ degrees in my house and everyone else is running around at night in shorts and I'm curled in a ball dressed in layers and covered w blankets. It's ridiculous!

However, I'm super sun sensitive so I've gotten a break from that since it's winter :)

leslieliesel profile image
leslieliesel

I am just getting out of bed, after 2 days in it. I feel about the same as you describe. The thing is, I am scheduled for surgery tomorrow(tuesday)....I am doing all that I can to be well enough to not be canceled ..... BTW, Tiras, Does you wife also have an AI disease..Somehow I got that impression..Mt husband had Sjogren's but he is mildly bothered by it....I think though that a lot of his symptoms he complains about IS Sjogrens...He hasn't been to a Rheumy in about 10 years...Hope You are feeling better today

Tiras profile image
Tiras in reply toleslieliesel

My wife has severe arthritis, thyroid is producing nothing, B12 and vitamin D is almost nonexistent. She has just recently started taking medication for all of these issues.

Hope all turns out well for you!

leslieliesel profile image
leslieliesel

Thank You....

I hope the new medication helps you wife's issues....UGH...I hate medication!!

Tiras profile image
Tiras in reply toleslieliesel

So do I, can't afford, can't live without it!

LouLamb profile image
LouLamb

I can’t imagine the cold weather where you are. I’m in the Uk . I think it’s cold enough here 😂. My things go white and frozen just getting dressed in the morning

Tiras profile image
Tiras in reply toLouLamb

Thankfully we have warmed up, it is 43 degrees Fahrenheit (6 degrees Celsius) here this morning!

ekdona profile image
ekdona

Know the pain issue. Lots of folks here

In US can't really relate to such severe

Pain if you "look" okay outside. I hurt

More now as well.

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