LUPUS UK
21,161 members16,758 posts

I’m also one of the lupus fighters 😭

Hi, I’m a girl 21 years old

I feel alone😭

14 Replies
oldestnewest

Aww you’re never alone on here Sopia. Please do post and tell others about yourself, what you’re planning to do over the festive season and how you’re feeling about it all. Hugs, Twitchy x

6 likes
Reply

But I’m so sad because I can not get treatment 😭

Reply

And why can’t you get treatment? Have you not yet been officially diagnosed? Please tell us all and I’m sure that others with Lupus will try to help you. I have Sjögren’s myself. 🤗

1 like
Reply

my treatment had to stop because my family had no money😭in Indonesia the treatment of lupus is not very good.

Reply

has been examined by doctors in penang result of lupus arthritis

Reply

I’m so very sorry to learn that you are struggling to access treatments due to financial difficulties in a country without a national health service.

All I can think to suggest is that you read up on Lupus UK, focussing on information about natural therapies and holistic approaches to living with Lupus. Hopefully other sufferers reading your post will have more specific ideas and suggestions for ways to help you manage your Lupus naturally.

Meanwhile I hope that just knowing you aren’t alone is a source of some comfort too.

Twitchytoes x

1 like
Reply

Hi Sopia! I've recently joined myself and have found that this is a lovely community that has helped me feel better in light of my recent diagnosis.

Unfortunately the admins are off at the moment for Christmas but the LupusUK website has a lot of leaflets full of advice.

What has prevented you from getting treatment?

Wishing you a very merry Christmas and a happy New year.

1 like
Reply

the treatments at penang are nice but very expensive. my family has no money so my treatment must stop😭😭

Reply

Hi Sophia. Happy to try and assist. Kevin Chair Lupus UK

1 like
Reply

Sorry Sopia. My spelling is atrocious!!

Reply

Hi, Sophia. I in Iran, too, have your problem. In addition, I am a man in his late 50s. But hopefully you will find the good treatment out of herbs that are abundant in Indonesia with humble prices. Please try them, too. And remember that: You are not alone here at all. Happy Christmas!

Reply

Go to the wikipedia page or just google - Healthcare in Indonesia. There might ? be some publicly funded places to access healthcare. Go online to research it so you can access it. You might have to fight for it and travel to get the healthcare you need.

Prednisolone is a reasonably cheap drug to obtain and is the core mainstay of Lupus treatment. You should be able to get access to it somehow.

Go online and research it all. Get advice from here.

Go to your local Pukesmas and ask what treatment you require.

Reply

Hi Sophia, Im sorry that you are going through this. I am praying that you will find help. There are a lot of great suggestions on here. Do know that you are not alone and can reach out on this site whenever you are feeling alone. Take good care and God bless. Xo Nan

Reply

Hi,

You may want to contact the Syamsi Dhuha Foundation which is based in Indonesia for information on lupus support and services available to you: syamsidhuhafoundation.org/i...

Using an online sociable forum such as this one gives you the opportunity to connect with other people who have lupus and can help relieve the worries you may have by hearing other peoples’ experiences. You are not alone, everyone in this community is here for you!

You may like to read this article called 'Getting the Support You Need When You're Living With Lupus' here: jakartaglobe.beritasatu.com...

Wishing you all the best.

Reply

You may also like...