One of the best ever lupus charts: really helpful - LUPUS UK

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One of the best ever lupus charts: really helpful

Barnclown profile image
Barnclown
β€’19 Replies

This came my way yesterday. I forwarded it to one of my dearest lupus buddies who told me it's brilliant. When I first looked at it, I thought it's one of the best charts yet at explaining the multisystem effects of lupus...ok, so we know lupus isn't necessarily responsible for EVERYTHING that happens to us healthwise....but my feeling is that lupus is usually involved in virtually everything...to some extent....so here's the link to this great chart...with my love and best wishes to you all

πŸŽ„πŸ€ coco

healthline.com/health/lupus...

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Barnclown profile image
Barnclown
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19 Replies
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lupieibbie profile image
lupieibbie

Genius! I agree that lupus gets its dirty paws on the whole body system. Before my diagnosis, I was disgustingly healthy and now ..... well, you know the rest.

Thanks again for sharing, Barnclown. I wish you well and a very happy festive period to you and yours.

Off to write an eleventh hour letter to Santa ....

Dear Mr C,

Please could we have a cure for lupus.

Many thanks.

p.s. I've been good all year!

X

Barnclown profile image
Barnclown in reply to lupieibbie

Come on Santa Baby: JUST DO IT❗️PLEASE....πŸ‘πŸ‘πŸ‘πŸ‘πŸ˜‰πŸŽ„πŸ€

misty14 profile image
misty14

Hi Barnclown

Another reason this article is very helpful is that it shows how lupus affects the linings of the different major organs. This explains why the inflammation is hard to detect when we're tested!. In my case, the linings of my bowel, heart , lung and bladder and now possibly abdomen are affected!. Your bladder and abdomen could be similarly affected and if nothing else the article proves that these auto- immune illnesses are very systemic as they affect our whole bodies!.

Thank you so much for sharing this and I hope you have a very happy and healthy Christmas. Looking forward to more great posts from you in 2016. X

P.s is that a beautiful picture of your home and deer?.

Barnclown profile image
Barnclown in reply to misty14

WELL SAID: exactly πŸ‘πŸ‘πŸ‘πŸ‘πŸ‘πŸ‘πŸ‘πŸ‘πŸŽ„πŸΎπŸŽ‰

Yes...a very fine Roe Deer Buck fleeing a dog walker on the public footpath near us....photography is one thing I can do again thanks to my lupus treatment plan...that was a very lucky shot: I just happened to be in the right place at the right mo....which is how I feel about finding our wonderful forum😘

Maya23 profile image
Maya23

Thanks for sharing that! It's a helpful chart :)

Barnclown profile image
Barnclown in reply to Maya23

πŸ‘ŒπŸ˜˜πŸŽ„πŸ€

babssara profile image
babssara

What a fantastic Christmas photo coco.

Babs x

Barnclown profile image
Barnclown in reply to babssara

Thanks Babs...this photo means a lot to me! And it means even more now that good forum friends like you are feeling it's special too...πŸ˜˜πŸŽ„πŸ€

babssara profile image
babssara

Get it framed x

Barnclown profile image
Barnclown in reply to babssara

πŸ‘Œ will doπŸ‘β—οΈ πŸ˜‰πŸ˜˜

GloomyEeyore profile image
GloomyEeyore

Thank you for sharing. I have not yet got a confirmed diagnosis but my rheumatologist strongly suspects seronegative lupus. This chart will really help me to highlight all the symptoms I have. I have had bother with swollen glands for years, (ever since I had glandular fever), but no medic has ever said that lupus could be the cause. I was at my GP on Wednesday and discovered he has referred me to a pulmonologist. The pulmonologist wants me to have a scan before he sees me. The reason for the referral is chest pain that has gone on for years. I am also still getting over a bout of pleurisy. I don't even know if my diagnosis of adult onset asthma is asthma. I was diagnosed three years ago at the age of 35. I had no tests done and was not diagnosed by a doctor, but a nursing practioner. Diagnosis was made on the basis of a low peak flow reading which improved when salbutamol was used.

GloomyEeyore profile image
GloomyEeyore

Hit reply too soon. Wanted to say Happy Christmas! Hope you all have a pleasant, painless and healthy as possible day. Xx πŸŽ„πŸŽ…πŸ»

Barnclown profile image
Barnclown in reply to GloomyEeyore

Thanks eeyore: your story is very interesting, and certainly illustrates how/why this chart can help us a lot. Are you in the UK? πŸ€

Happykins profile image
Happykins

This is brilliant Coco, thank you!

Merry Christmas xx

Barnclown profile image
Barnclown in reply to Happykins

Glad you like it! πŸ‘ŒπŸ€

cuttysark profile image
cuttysark

Happy Boxing Day Coco, marvellous chart, must print it out.

Had a super day yesterday, all the family helped and made it so much easier!!!

Really love your photo, so very seasonal, and beautiful deer in classic pose!

Hope you were inside cosy with your Christmas Pud.

C xx

Barnclown profile image
Barnclown in reply to cuttysark

Marvellous is right! And happy Boxing day to you too...it's lovely to know your family are all pitching in πŸ‘πŸ‘πŸ˜˜

GloomyEeyore profile image
GloomyEeyore

Yes, I'm in the UK. Up in Scotland.

Barnclown profile image
Barnclown in reply to GloomyEeyore

Am so glad this chart helps. Hope you see the pulmonologist v soon. Many of us do have previous diagnoses refined or even overturned. You've been through a lot. And I hope you'll let us know how you get on. It sounds as if your rheumatologist has expertise in Connective Tissue Disorders (basically, these include Lupus): πŸ‘πŸ‘πŸ‘πŸ‘, this sort of expertise counts for a lot during the diagnostic process...which can take some time.....during which, hopefully, your consultant will feel confident & experienced enough to trial appropriate meds: from which lots can be learned (via your reaction to treatment) about your version of immune dysfunction. πŸ€πŸ‘

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