Throat discomfort

[Runny]

I am new runny , finding it hard to handle the symptoms

[whisperit]

Hello runny,

Sorry to hear you are finding things difficult. Do you want to say a bit more about what you are finding difficult - and maybe what you have tried so far?

x

[Runny]

Sored throat, tremor,sored mouth, difficulty in breathing, chest discomfort

[whisperit in reply to Runny]

Thanks. The difficulty in breathing is the most worrying - if this is new, you need to contact emergency services. Are you on any treatments at the moment? x

[Runny in reply to whisperit]

On perisidoone and vitamins

[whisperit]

Most people with lupus or a related condition are put on steroids (like prednisolone) and an immune regulator like hydroxychloroquine. Have you? And for how long? What is the problem you are struggling with most, and what do you think this forum might be able to help you with? x

[Runny in reply to whisperit]

Been on the tabs for two weeks, didn't know had the rash four months ago but thought it was just mere rash. Tremors, Breathing and swallowing difficulty. What can I do to ease those

[whisperit in reply to Runny]

Thanks runny,

I had breathing difficulties at first due to inflammation of my lungs. The prednisolone (15mg a day) plus hydrocychloroquine (this takes a few months to work) reduced it very effectively. Since you are newly diagnosed, I would suggest that you return to your specialist - or at least your family doctor - and discuss things with them. Treatment with steroids only may not be enough? x

[Runny in reply to whisperit]

Thanks I am on prednisolone 30mg and hydrocychloroquine and vitamins and antibiotics

[whisperit in reply to Runny]

OK - as you may know, it does take the hydroxy several months to work, so it might be that it hasn't kicked in yet?

You might find the LupusUK leaflets helpful - there's one on lung and heart issues (number 13)

lupusuk.org.uk/publications/

x

[Chanpreet_Walia LUPUS UK]

Hi Runny,

Welcome to the LUPUS UK HealthUnlocked Community!

Have you spoken to your GP or rheumatologist about this? According to The Lupus Encyclopedia, a sore throat in a person with SLE can be treated with steroids and other anti-inflammatory medications.

We published a factsheet on LUPUS: The Mouth, Nose and Eyes which I hope you will find useful: lupusuk.org.uk/wp-content/u...

We offer a free information pack that contains guides, factsheets, a list of helplines and a list of LUPUS UK contacts who you can chat with over the telephone. To download or request the pack please click here: lupusuk.org.uk/request-info...

We published a factsheet on ‘LUPUS: The Heart and Lungs’ which discusses how lupus affects these two organs and the common symptoms that can possibly occur: lupusuk.org.uk/wp-content/u...

If in doubt, it is always worth speaking to your doctor about the symptoms you are experiencing as he/she can provide you with the correct advice and treatment. Also, the doctor may refer you to a specialist such as physiotherapist or pulmonary specialist if required (breathing difficulties).

Please let us know how you get on, wishing you all the best.