I am in desperate need of answers instead of keep being told i am complex case!!! i have lupus and Antiphoslipids, and chronic asthma, Just on 17th april 2015 was admitted for a new port a cath this is now my 3rd one in 4years as they keep getting blocked, However since this has been in place i was discharged within the week only to end up back in hospital for another 2 weeks still with no answers on why i am in chronic pain from neck through to bottom of spine and shoulder , i also had a clot in right arm that thankfully has gone , but still no let up with all the pain. I had a MRI and this found nothing , I am sick of having to take MST , everyday just to get slight relief.
I am at cambridge on thursday hoping they will consider starting me on something else other than warfarin , but not holding much hope as they say my INR needs to be stable and t never is. I am allergic to clexaine.
Any advice please this is driving me mad.
sorry for the moan but i don't no what else to do i have been stuck in bed for most of 5 weeks now , not much of a life .