So, i cut my hair Super short. It was a daring and brave decision on my part. I have never had short hair EVER! Ive been on plaquenil, bactrim, methotrexate, prednisone and folic acid. I also, just had Rituxan infusions about a month ago. My SLE and MCTD are stable now, unfortunately not in remission. And for my ILD i dont feel any different or better in my lungs.
However the medicine or the disease is causing my hair to be super thin and fall out super fast. Ive tried shampoos and vitamins but iys not working. So i decided to give myself a pixie hair cut.
Has anyone had to do the same thing?
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Jaylowdancer
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Cyclophosphamide, Azithromycin, high dose Pred.(causes thinning I believe) and a whole long list of other drugs to stabilise UCTD and Lung disease, osteo is not too bad at the mo but Fibro giving gyp still.
Was afraid my long thick hair would fall out with the Cyclo. So had it cut really short. Hair IS dropping more, clogs the plughole but not in clumps , and has become very fine and limp, so glad I didn't leave it long, sad though, had beautiful copper hair, my crowning glory!
Hi jay , i also take plaquenil and am getting 3rd rituximab infusion in a month also hypothyroid. My hair make me miserable at times , it is quite short and has thinned at the top . Now i have found the texture of my hair has changed and becomes frizzy and unmanageable. I do take care and use good conditioner but still a problem. Even my husband has noticed so things must be bad . My hairdresser says that illness and the heavy treatment we are on has a big impact. I will follow this post with interest, 😀😀
I just but mine way short last week as I don't have the energy to mess with it. It's about bob-length, shorter than I've ever had it. I don't really like it much but I have to admit it takes all of five mins to wash and comb out the tangles now so there is that. If I want to have long hair for going out I have a wig. I would like more extensions but they are expensive and we have a tight budget right now so it will have to wait a while.
Mine has been really bad for ages now and I have just had to adjust to it (or at least try to). I have just a minimal amount precious strands left and have had to give in and buy a wig.
I wear a soft hat at night and I never thought this would happen to me! But it did, and now I have a real hair wig and couldnt live without it. It hides so much and makes me feel back to normal although I know underneath it is horrible. I had nice long natural blonde hair with a natural wave until this rotten disease started and then all the meds kicked in.
I try to reasure myself that I am lucky I have been helped and that I have excellent care with two really good consultants.
My hair would be the last of my concerns if this desease took hold so I try to help myself by holding that thought.
Quite often strangers have complemented me on my hair! ;O)
I do like to express my concerns on here once in a while because you are the only people who truly understand.
It's a pig of a disease, but we are all here to tell the tale and long may that last!
Thank you everyone so much for your replies. I cried just knowing im not the only one going thru this. It was hard for me to accept that i had to cut my hair so short. I did it cause long thin hair wasnt working anymore either.
Im hoping that at least there is something we may be able to do to grow our hair at least to a way we all can feel comfortable and confident.
Dont cry 🌸🌸🌸i know how you feel my hair had always been part of who i am in someways and has broke my heart to see it get so thin and whispy. BUT there are more important things and we must just deal with what what we can. I never go out without my face on as it makes me feel better in myself. I know its may not seem important to others but it is to me . Im not vain in anyway but its like ''putting a good face on ''and facing the world . Best wishes xxxx
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