Lupus feeling cold

[jensen_lynne]

When you have lupus do you guys have a burning feeling When you touch cold things or when you're out in the cold?

[Hidden]

Could you maybe have raynauds get your doctor to check for it its an easy blood test

[jensen_lynne in reply to Hidden]

Is that part of lupus?

[jensen_lynne in reply to Hidden]

Can you have that and have lupus too?

[Hidden]

Yes it mimics as you know when i first got my diagnosis i was the same and it was a hot day but tips of fingers and toes were cold and tingling sore tablets soon sorted me out and touch wood not had again hope this help you

[jensen_lynne in reply to Hidden]

What does mimics mean?

[Hidden]

To copy an other illness to mimic thats what this means can imitate any other illness ask your doctor as it can copy a multitude of things

[jensen_lynne in reply to Hidden]

Oh ok can you have a burning feeling to cold when you have lupus too?

[Hidden]

Yes i have this most days in my legs which is now restless legs syndrome and is bloody awfull but body does this also

[Ianrussell69]

This is one of the joys of lupus

[Chanpreet_Walia LUPUS UK]

Hi Jensen_Lynne,

Have you discussed this with your doctor?

The symptom you are describing sounds like ‘Raynaud’s phenomenon’; have you been diagnosed with this?

In people who have Raynaud’s, the small blood vessels in the extremities are over-sensitive to changes in temperature. This causes a Raynaud’s attack where the fingers sometimes change colour (but not always) from white, to blue, to red. Sometimes the fingers may become painful or have a tingling sensation during the event. Symptoms of a Raynaud’s attack can last from a few minutes to several hours. We published a blog article on ‘Coping with Raynaud’s Phenomenon’ which you can read here: lupusuk.org.uk/coping-with-...

Please keep us updated, all the best.

[777dove]

My hands and feet are almost always constantly so cold I can't stand it. Last night hands suddenly warmed up without any intervention by me. Strange. I think I have an Autonomic System Dysfunction going on. It affects my gastrointestinal tract, too. Or is it Peripheral Neuropathy? I dunno. Whatever it is, I don't like it!