I have lupus and aps and my main joints affected are hands and wrists.
At the moment tho my right hand and wrist is so bad I can hardly move or use it! I'm on slow release morphine which I increased a bit but doesn't seem to be touching the pain.
I have 2 small children and am finding it so hard to pick my 16 month old up or even change her nappy is agony.
Saw gp again! today who has tripled my steroids which I hate doing, I thought now on mycophenalate I wouldn't have to do that anymore. I'm back on so many drugs am so fed up! I'm on about 140 tablets a wk!! Which is ridiculous where is it gonna end and how am I gonna carry on working ( I only do 2 days because I can't manage more) but I am struggling now with my hand.
Sorry just needed a moan, I'm right handed and it's just so hard and I feel like my kids are missing out because of me cos I can't always take them out or do stuff with just one good hand! I worry that it will be like this forever now.