I had an appointment with my Rheumy this past week and she told me a couple of surprising things based on what she says is "new research"...
-disease activity in Lupus patients decreases with age.
-Plaquenil use is shown to have a greater effect on the retina than previously thought.
Consequently, she has decided to LOWER my Plaquenil dose to 300 mg a day from 400 mg a day. This despite the fact that my joint pain and other "disease activity" is pretty much the same if not worse. I am also on Benlysta infusions once a month and LOTS of ibuprofen and Alleve. I've only seen her twice (this past appointment was my 2nd). I don't know how she can make these decisions about my treatment without knowing me a little better.
Oh, and one kind of important thing...she says that my labs are all good. So why change anything? I wish I had thought of asking her that when I saw her but you know what it's like when you get in that little room. I guess I was so shocked at what she had to say that I was left speechless.
Has anyone else heard of these new research findings? I should mention that I really have a lot to be grateful for, none of my vital organs have been affected by lupus. Been diagnosed since 2013. Have always had good doctors up to this point and only had to make a change this year because of insurance. My last doc was amazing.
Thanks for listening!