As most of you know, I have SCLE. Diagnosed 2013. This diagnosis was amended to SCLE with Systemic features last year, following a biopsy of the rash at the nap of my neck. Previous dermies had told me that it wasn't anything lupus related and that it was eczema. Doing some google research I found out that actually a rash at the nap of the neck is quite common with SCLE. Typical of my experience with doctors so far. But luckily for me the biopsy results showed skin changes at most levels and outcome was active lupus disease activity. Diagnosis was amended. I have subsequently been put on 3g of MMF a day, max dose, as well as the hydroxy, plus antihistamines and iron supplements. I have used various steroid creams and scalp applications on this rash and at one point my husband told me it had virtually gone and only the biopsy scare was visible - as it turned out, he meant the rash below my hair line wasn't visible! 🙈 The rash within my hair never went away. So on Friday I asked him to take a photo of it for me - as it had been itchy again and it turns out it is spreading again. It hasn't grown or got worse for a while now. Could this be related to my recent flare? Must be a flare of some description, headache and extreme chronic fatigue and head pains, burning knees etc. I know there aren't many SCLE patients here - we're apparently only 10% of lupus sufferers - but any thoughts appreciated. Thank you.