I've really been struggling with an odd phenomenom for about a year and didn't think to ask here until I saw a similar post. There is a steady low hum - like a gas plant or factory - sounding in my head. I figured it had something to do with the nearby feed store, but that's been ruled out. They only grind feed at certain times during the day and I hear this noise is 24/7. I thought there might be a bad transformer, so I called the electric company and they checked it and said it was fine as well. I figured maybe there was a random motor running so I turned off all the power in the house, but I could still hear it. The strangest thing is my husband nor anyone else can hear it. I have not been diagnosed with lupus, but I do have most of the symptoms and I suffer from chronic migraines, fibro, and a few other miscellaneous things. Has anyone else experienced this? It's more of a low vibrating hum that goes in and out like an oscillating fan.
Steady low hum - like a gas plant or factory?!?! - LUPUS UK
Steady low hum - like a gas plant or factory?!?!
This has just started with me . I never notice it until there's complete silence and I freaked myself out . Now I can't stop noticing it . No idea what's going on but it's the most annoying thing , driving me crazy.
Could this be tinnitus? Have you discussed it with your GP?
Have a look at this link and see if it describes your experience.
Sounds like tinnitus. Many suffer from this here. As do I (tho mine isn't too bad). Some say it's from Lupus, others say from lupus meds (tho I had tinnitus way before taking meds), still others swear it could be from hypothyroidism (I am hypo too) or APS - sticky blood syndrome (no formal APS dx for me but I did test positive to antibodies)).
I went to ENT. Everything looked fine and I have no hearing loss. No one can really say what causes it and as far as I know, there aren't any treatments.
Always good to mention to your doctor. They may have some insight.
Do you have to be dx with antibodies for APS!? As I said below, in 8th grade I remember my doctor telling me "the platelets were sticking in my neck." That's never made sense, but I wonder if that's my childhood ears interpreting APS?!
Here in the US, it is difficult to get an APS diagnosis.
In addition to positive auto-antibodies, you have to have had a DVT or clots or TIA or stroke or miscarriage. I've never had DVT, TIA, or stroke but I did have a miscarriage (I was young - mid twenties) and also a strange episode of severe chest pain (swore I was having s heart attack, that lasted a few minutes then subsided. I was very sore the next day). I have been thru many cardiac tests and everything looks good so still no formal DX.
My rheumy watched this closely and I take 88mg aspirin daily.
Lately,y tinnitus hasn't been too bad. I wonder if it because I am now properly medicated for my Hypothyroidism.
Have your thyroid levels ever been tested?
Mine are mild. I take 25mg Synthroid a day.
I agree - sounds like Tinnitus.
When I have a flare and need to take 10mg Pred or above I get Tinnitus. It's listed as one of the side effects of Pred. Once I start tapering the Tinnitus subsides.
That’s interesting.
I suppose it could be Tinnitus based on the link offered by RubyTuesday2. However, milkwoman mention APS! That's interesting bc in 8th grade I remember my doctor telling me "the platelets were sticking in my neck." That's never made sense, but I wonder if that's my childhood ears interpreting APS?!
Breastfeeding with Lupus and Sjogrens 
Does anyone have Discoid Lupus that has caused permanent scarring and alopecia?
Plaquenil and dark circles
Burning stinging skin
Promising developments or a blip?
