LUPUS UK
21,153 members16,756 posts

Steady low hum - like a gas plant or factory?!?!

I've really been struggling with an odd phenomenom for about a year and didn't think to ask here until I saw a similar post. There is a steady low hum - like a gas plant or factory - sounding in my head. I figured it had something to do with the nearby feed store, but that's been ruled out. They only grind feed at certain times during the day and I hear this noise is 24/7. I thought there might be a bad transformer, so I called the electric company and they checked it and said it was fine as well. I figured maybe there was a random motor running so I turned off all the power in the house, but I could still hear it. The strangest thing is my husband nor anyone else can hear it. I have not been diagnosed with lupus, but I do have most of the symptoms and I suffer from chronic migraines, fibro, and a few other miscellaneous things. Has anyone else experienced this? It's more of a low vibrating hum that goes in and out like an oscillating fan.

9 Replies
oldestnewest

This has just started with me . I never notice it until there's complete silence and I freaked myself out . Now I can't stop noticing it . No idea what's going on but it's the most annoying thing , driving me crazy.

1 like
Reply

Could this be tinnitus? Have you discussed it with your GP?

Have a look at this link and see if it describes your experience.

nhs.uk/conditions/tinnitus/...

2 likes
Reply

Sounds like tinnitus. Many suffer from this here. As do I (tho mine isn't too bad). Some say it's from Lupus, others say from lupus meds (tho I had tinnitus way before taking meds), still others swear it could be from hypothyroidism (I am hypo too) or APS - sticky blood syndrome (no formal APS dx for me but I did test positive to antibodies)).

I went to ENT. Everything looked fine and I have no hearing loss. No one can really say what causes it and as far as I know, there aren't any treatments.

Always good to mention to your doctor. They may have some insight.

2 likes
Reply

Do you have to be dx with antibodies for APS!? As I said below, in 8th grade I remember my doctor telling me "the platelets were sticking in my neck." That's never made sense, but I wonder if that's my childhood ears interpreting APS?!

Reply

Here in the US, it is difficult to get an APS diagnosis.

In addition to positive auto-antibodies, you have to have had a DVT or clots or TIA or stroke or miscarriage. I've never had DVT, TIA, or stroke but I did have a miscarriage (I was young - mid twenties) and also a strange episode of severe chest pain (swore I was having s heart attack, that lasted a few minutes then subsided. I was very sore the next day). I have been thru many cardiac tests and everything looks good so still no formal DX.

My rheumy watched this closely and I take 88mg aspirin daily.

Lately,y tinnitus hasn't been too bad. I wonder if it because I am now properly medicated for my Hypothyroidism.

Have your thyroid levels ever been tested?

Reply

Mine are mild. I take 25mg Synthroid a day.

Reply

I agree - sounds like Tinnitus.

When I have a flare and need to take 10mg Pred or above I get Tinnitus. It's listed as one of the side effects of Pred. Once I start tapering the Tinnitus subsides.

Reply

That’s interesting.

Reply

I suppose it could be Tinnitus based on the link offered by RubyTuesday2. However, milkwoman mention APS! That's interesting bc in 8th grade I remember my doctor telling me "the platelets were sticking in my neck." That's never made sense, but I wonder if that's my childhood ears interpreting APS?!

Reply

You may also like...