I have had Anosmia since before I was diagnosed with lupus. A while back I saw a forum discussion saying lupies with anosmia should have further investigations to rule out CNS involvements etc.
With me also suffering sudden hearing loss 9 years ago, I decided to ask for an ENT appointment. That was yesterday. I attended the meeting to discuss loss of smell but as it was ENT I also mentioned my hearing loss.
The consultant was excellent and sent me to audiology for an immediate test in a booth. Each time I have been tested previously my right ear has been completely dead. Yesterday I thought I might be picking up sounds. Incredibly slight but nevertheless. The audiologist confirmed that I did seem to be hearing sounds in my duff ear. Back to the consultant who tested me with a tuning fork. In the past there has been nil response. Yesterday I could feel some vibration and I believe I could slightly hear the tone.
I have been totally deaf in one ear for 9 years.
I don't know if this means anything going forward but it certainly put a smile on my face yesterday.
Next step MRI on the nose and sinuses. But that could be way into next year.
Just thought I would mention this. It may not lead anywhere. But I was told there was no way back. That may still be true. But never stop believing.