Nightly pins and needles: I am sooooo tired after... - LUPUS UK

LUPUS UK

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Nightly pins and needles

I am sooooo tired after another terrible night with pins and needles - woken up 3 times with it last night! I am rather confuddled when I wake up so not completely sure what side I am lying on when I wake, but the sensation is always in my right hand and arm and I favour my left side when sleeping, so it doesn't seem to be caused by a restriction of blood flow and moving or massaging the area doesn't help. I'm thinking it may be linked to the potential spine issues from the HLA b27. I read that if you start to fuse it can cause nerve problems. It is causing pain, not just a mild pins and needles sensation - hence waking me - and it is my whole arm. Last night even my shoulder blade was affected! Still now as I type, my little finger is numb and "pins and needly". And I'm at work so I have to type!! It seems like such a little thing, but man, it is causing big problems. Thank goodness I am self employed and can take a break to moan on here :) :) :)

7 Replies

Are you saying you have the HLA-b27 gene? Have you been investigated for actually HAVING ankylosing spondylitis? And if you have it - is it being managed? Physiotherapy etc?

There is a special MRI scan to confirm it if I remember rightly - quite specific.

in reply to PMRpro

yes I have the HLA b27 gene and am still waiting for my first rheumy appt so they can (I presume) investigate further... Already been cancelled once!

PMRpro profile image
PMRpro in reply to

Aaah - it will happen eventually! Sooner rather than later I'd hope though!

I've not been investigated further yet - still waiting for my rheumy appt, which has been cancelled and rescheduled once already, so fingers crossed this one goes ahead :( My GP tested for HLA b27 after he asked me, practically as I walked out the door, if I got any back pain. I'd gone to see him because I had a lot of joint pain and the pins and needles and hadn't mentioned back pain at all.

Hi I too have suffered with horrendous pins and needles in legs feet arms and hands at night and feel like dead arms and legs - the only thing I have found helps is pregabilin I take 75mg twice a day ! Best of luck x

in reply to JL1w

It's horrible isn't it? Feels weird and you can't sleep either!

I used to get this in my feet when I was trying to sleep. So annoying!! It doesn't happen anymore since I began Gabapentin.

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