I had an unexpected rheumatologist appt today (long story). Anyway I saw a different guy - the clinical lead. I was hopeful n left feeling quite positive but on reflection I'm not so sure ...
He didn't have my full notes but reviewed bloods and said he THINKS I have sjogrens. He's not sure coz I've not had saliva biopsy yet - apparently that's the clincher. I've not been tested for dry eyes (and haven't got serious symptoms - I can wear hard contact lenses for 18 hours quite comfortably) and both my GP and gynae assure me that's not dry either!
I DO NOT have the usual stuff for sjrogrens but do have almost all lupus symptoms and I get more and more each week. When I pushed a bit he decided I have unspecified connective tissue disorder which may lean towards lupus.
I've had some kind of injection to dampen my immune response and if no improvement I can start hydroxychloroquine which is probably what I'd get for lupus anyway. I got him to agree my GP can request it so I don't need to wait two more months until I see him again
I was so pleased (ironic I know nobody wants a sjogrens or lupus diagnosis) it felt like I was getting somewhere particularly as this injection might make me feel better in just two weeks.
Unfortunately I took a trip to see Dr Google and no matter how much I read about sjrogrens it doesn't make sense. My GP has also been adamant it's lupus not sjogrens
Does anybody have any thoughts or insight please?
My GP is on hols for a fortnight I could go to the other GP who is also great but isn't as involved. They said they would refer me elsewhere if my next rheumy appt was as "great" as the first. I'm tempted to ask them to do it rather than wait to see endochrinologist (adrenal gland and thyroid issues) and then refer.
Does this sound familiar and as though it's along the right lines?