Hi I am just wondering if anybody could give me some advice please. I have been ill since 2006, I was diagnosed with Fibromyalgia and I have ruptured discs and other problems. The thing is i really don't think all my problems are to do with Fibro, and I am getting worse. I have read about Lupus, so some months ago I spoke to my doctor about it. My symptoms are, really bad pain in my back legs arms neck, I lose a lot of hair, it comes out in hand full's, but grows back, I only have the butterfly rash across my face when I have a temperature, but I have a permanent rash on my chest, I have night sweats, I have terrible itching, I come out in a rash if I sit out in the sun, I am so tired most of my life is spent in bed, and it is not like a normal tiredness, my ESR blood test is always raised, I think that is it there maybe more but my memory isn't that good. A few months ago I spoke to my doctor about Lupus and she said, yes you may be right, so she sent me for some kind of anti nuclear test. Went back to see her and she said yes, it is positive you have lupus, so she sent me to see a Rheumatologist. He did another test and said it is not, he thought it could be PBC, then did tests said it wasn't that. So now I don't know where I stand, had blood tests last week, ESR still high but doctor said don't know what is causing it is something you may just have to live with she told me. But at the moment I am not living just existing, I can hardly walk, feels like i am walking through treacle, I am so tired, and I am all the other things I have said. Sorry for the long post, is there any advice anyone could give me.
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