Cellcept v myfenax update: I posted a while ago... - LUPUS UK

LUPUS UK

32,125 members28,443 posts

Cellcept v myfenax update

creaky profile image
2 Replies

I posted a while ago that I was concerned that my symptoms had stared to return after I swapped from branded mycophenolate, (cellcept) to the NHS unbranded (myfenax)

I saw the specialistnurse last week and expressed my theory.

She was listened and got a senior regarding from another team to see me as my consultant was not available.

They agreed that I may be right and I was prescribed cellcept and my oral prednisone was increased from 2.5mg to 7.5mgAn appointment was made for me to see my consultant in two weeks.

A good result you would think, however, my trip to the hospital pharmacy didn't go so well. Cellcept was unavailable and it would take 3 working days to get it!

That was a week ago now and still no word on it probably due to the bank holiday.

Anyway the increased prednisone made me feel better in the short term, and I suspect I will be offered an increased dose of cellcept (if they ever get it) next week.

I know there were people who were interested to know if they would prescribe cellcept rather than myfenax, I will keep you infomed

Written by
creaky profile image
creaky
To view profiles and participate in discussions please or .
Read more about...
2 Replies
Barnclown profile image
Barnclown

YIKES‼️ Our GP surgery makes us wait 3 days for most repeat prescrips...but this is a hospital pharmacy... 😜

Many thanks for this update creaky: I'd been wondering....am looking forward to more news coming in

🍀🍀🍀 🍀 Coco

PMRpro profile image
PMRpro

Even hospital pharmacies can't afford to keep large stocks of anything these days - particularly when it is something that isn't used a lot. It's hard on the patient but it's going to get worse I suspect...

On the positive side - at least they listened and agreed it was likely!

Not what you're looking for?

You may also like...

Update cellcept v myfenax

I had a review with my rheumatologist this week, and after several months of feeling pretty awful,...

Mycophenolate intolerant

I posted a couple of days ago wondering if some of my recent symptoms were the result of a reaction...

Cellcept side effects

Sorry, I seem to do nothing but ask for advice! But I don't really know anyone who has lupus...

Tacrolimus for lupus nephritis Class V? Cellcept isnt working.

Hello, Does anyone have experience with adding Tacrolimus for nephritis? Quick summary-At 22 dg...

Rheumatology appointment update

So my appointment at Chapel Allerton clinic was yesterday. Saw another different consultant and...