I posted a while ago that I was concerned that my symptoms had stared to return after I swapped from branded mycophenolate, (cellcept) to the NHS unbranded (myfenax)
I saw the specialistnurse last week and expressed my theory.
She was listened and got a senior regarding from another team to see me as my consultant was not available.
They agreed that I may be right and I was prescribed cellcept and my oral prednisone was increased from 2.5mg to 7.5mgAn appointment was made for me to see my consultant in two weeks.
A good result you would think, however, my trip to the hospital pharmacy didn't go so well. Cellcept was unavailable and it would take 3 working days to get it!
That was a week ago now and still no word on it probably due to the bank holiday.
Anyway the increased prednisone made me feel better in the short term, and I suspect I will be offered an increased dose of cellcept (if they ever get it) next week.
I know there were people who were interested to know if they would prescribe cellcept rather than myfenax, I will keep you infomed