I am at the hospital with my Dad, it does not look very well. He has pulmonary fibrosis, and it looks as if it has started the final stage. He has now been out on 5 liters of oxygen. He was on 3 liters.
I know this has nothing to do with lupus other than me with my lupus issues staying with him at the hospital . Yes I am barefoot as you can see.
I just wanted to let you all know because this Commuinty has become an extended family to me.
Keep me and my family in your prayers and thoughts!
👣Tiras👣
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Tiras
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Sorry to read how poorly your Dad is. Hope he does improve even if only a little!. You look after yourself as much as you can as stress is no good for Lupus!.
Hi Tiras, so sorry to hear about your father. My heart goes out to you. I, like many other's, have felt what your probably feeling now. We may not be physically with you, but we're all thinking & praying for you. Remember to try & rest when you can. Sending hugs x
Thank You! Yes it looks like rough times are ahead. We were told it could be 2 weeks to 6 months but the end of life is near. I have been at the hospital for the last 2 days. They will let him go home as soon as we can find a medical health care equipment company that can supply the machine that can supply him oxygen. The doctors are very helpful and trying hard to find it.
Yes, it is stressful and trying to prepair for what is coming is not easy. Again I will do what I have to do my lupus will not stop me regardless what it throws at me.
Dad was always there for me. I WILL BE THERE FOR HIM!
So sorry to read your post Tiras, my heart goes out to you, I have been through this with both my parents so I know exactly how you are feeling right now.
We have been told he has 6 months or less. His lungs will get worse by the day. I have some hard rough times in the days to come. I pray for strength to get me and my family through it. I pray for wisdom to make the correct decisions. With tearful eyes it is sometimes hard to see clearly.
I have been at the hospital for 4 days. I am so tired, I hurt all over inside and out. Dealing with rash/blister on my foot. It seems as if everything hits at one time?
I, too,stayed with my father while he slipped away. I pray that he goes easy. The stress was great-my hair fell out and I had not yet had lulus. Ifelt that God was unjust in making him and my family suffer for so long. Try to keep your faith, take extra care of yourself and know my prayers are with you and your family.
Sorry I am late in replying and even more sorry for what you are going through.
I have been through very similar with my dad albeit I was a lot younger and it came out of the blue .I know there are no words that can really help but I wish you all peace in your hearts and that you gain strength from your beliefs to deal with the future.
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