Hi all;

I am at the hospital with my Dad, it does not look very well. He has pulmonary fibrosis, and it looks as if it has started the final stage. He has now been out on 5 liters of oxygen. He was on 3 liters.

I know this has nothing to do with lupus other than me with my lupus issues staying with him at the hospital . Yes I am barefoot as you can see.

I just wanted to let you all know because this Commuinty has become an extended family to me.

Keep me and my family in your prayers and thoughts!



27 Replies

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  • Tiras

    I am so sorry to learn of your news it certainly cannot be easy for you and my thoughts are with you right now.

    I can't say anything that will improve the situation I am sorry but you and your family are in my thoughts and prayers and I am thinking of you all.

    Lots of love to,you all .



  • Crusee;

    Thank You!

  • So sorry Tiras - thoughts with you and your family. X

  • Twitch;

    Thank you!

  • Hi Tiras

    Sorry to read how poorly your Dad is. Hope he does improve even if only a little!. You look after yourself as much as you can as stress is no good for Lupus!.

    Sending healing thoughts. X

  • Misty;

    Thank You!

  • Hi Tiras, so sorry to hear about your father. My heart goes out to you. I, like many other's, have felt what your probably feeling now. We may not be physically with you, but we're all thinking & praying for you. Remember to try & rest when you can. Sending hugs x

  • Smudge;

    Thank You!

  • Am so glad you posted dear BFGπŸ‘πŸ‘πŸ‘πŸ‘

    Am vvv glad to know you're doing the πŸ‘£πŸ‘£πŸ‘£πŸ‘£ at hospital

    Am sending you & your family much love 😍

    Am thinking of you all at this especially tough time....❀️

    Wishing you all the best in the best of all possible worlds 🌈🌠


  • Hi Coco;

    Thank You! Yes it looks like rough times are ahead. We were told it could be 2 weeks to 6 months but the end of life is near. I have been at the hospital for the last 2 days. They will let him go home as soon as we can find a medical health care equipment company that can supply the machine that can supply him oxygen. The doctors are very helpful and trying hard to find it.

    Yes, it is stressful and trying to prepair for what is coming is not easy. Again I will do what I have to do my lupus will not stop me regardless what it throws at me.

    Dad was always there for me. I WILL BE THERE FOR HIM!

    I will keep y'all updated as things progress.

    Again thanks to all for prayers and thoughts!


  • am with you all in spirit


  • Hi Tiras, I will put you and your dad in my prays tonight. Chin up take care. Laura.

  • Laura;

    Thank you!

    My wife's name is Laura also, and she is wonderful !


  • So sorry to read your post Tiras, my heart goes out to you, I have been through this with both my parents so I know exactly how you are feeling right now.

    I'm glad you are able to be with him.

    Thinking of you and your family and sending hugs.


  • Diane

    Thank you

  • Much love and prayers for you and your father and family. I love reading your posts and yes, it does feel like family, doesn't it? X 🌈🌹

  • Music;

    Thank you!

  • Thinking about you Tiras and your dear Dad.

    Hope all our thoughts and prayers on here give you comfort. Your Dad will be so helped by you being there for him. X

  • Cuttysark;

    Thank you!

    We have been told he has 6 months or less. His lungs will get worse by the day. I have some hard rough times in the days to come. I pray for strength to get me and my family through it. I pray for wisdom to make the correct decisions. With tearful eyes it is sometimes hard to see clearly.

    I have been at the hospital for 4 days. I am so tired, I hurt all over inside and out. Dealing with rash/blister on my foot. It seems as if everything hits at one time?



  • This is a really tough time for you all but you will get the strength, and you will get through it.

    The love you have for your Dad and the closeness of your family is a real blessing.

    Although there is half the world between yourself and most of us on here ,we are all thinking about you. Xx

  • Thank You so Much!!!!!!!!!

  • I, too,stayed with my father while he slipped away. I pray that he goes easy. The stress was great-my hair fell out and I had not yet had lulus. Ifelt that God was unjust in making him and my family suffer for so long. Try to keep your faith, take extra care of yourself and know my prayers are with you and your family.


  • Nonanona;

    Thank you;

    I know Everything works for the good of God. We as humans sometimes don't understand and we shouldn't but we ask why.

    When Dad's time is up, I can say like King David said in the BIBLE. I can't bring him back but, I can go to where he is when I die.

    That is the only way to look at it.

    I wish you and your family the very Best!

    Again than you!


  • Hi Tiras,

    Sorry I am late in replying and even more sorry for what you are going through.

    I have been through very similar with my dad albeit I was a lot younger and it came out of the blue .I know there are no words that can really help but I wish you all peace in your hearts and that you gain strength from your beliefs to deal with the future.

    With you in spirit with kind and caring thoughts

  • Littleeffie;

    Thank you for the kind words of inspiration.

    I know we are half a world apart but, I can feel y'all with me in sprit!

    Again THANK YOU!


  • Still thinking of you and yours.

    Sending kind and caring thoughts across to you all

  • Littleeffie;

    Thank You so much for kind and caring thoughts!


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