Just a quick update

Just a quick update


Hi everyone; just to let everyone know Mom & Dad are still having issues. I have got to take Mother to the doctor 3 more days this week. We were at the doctor and hospital yesterday for test. She has been sick all weekend.

As for me, you can see in the photo that my lupus rash/blisters on my foot are starting to settle down a bit. Still have to go barefoot but, I don't have the ugly or maybe I should say not as ugly rashe/blisters on my foot for now.

On the lighter side I'm not sure how to take it when my wife (Laura) tell me her husband, that, with out hair on my legs they fill soft and silky. I'm not so sure they is a compliment coming from my wife?

Oh well, all the effects of lupus gotta laugh or you will be crying about it!

I will update when I can.

I wish for all of you the BEST!


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  • Am SO GLAD of your news dear BFG: many thanksπŸ‘πŸ‘πŸ‘πŸ‘

    You & yours have been on my mind

    Am relieved these symptoms are damping down this way πŸ‘πŸ‘πŸ‘πŸ‘

    And am delighted your Funny Bone is good working order πŸ˜†πŸ˜†πŸ˜†πŸ˜†

    Sending you all πŸ€β€οΈπŸ€β€οΈ Coco

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    Thank you Coco, I have not had much time to make post or even read other post. I do when I can get a few minutes. A lot of times I am tired and try to rest when I can. I have not nor am I neglecting y'all. I think about all of my friends here and hope everyone is doing well!


  • Yes & many thanks dear BFG: please be assured I feel that in no way are you even coming close to neglecting anyone in your life (even yourself) including your friends here.

    I have been resisting contacting you: vvvv much feeling you've got plenty on your plate without pressure from any of us for updates....and, even after only a few months of your presence here on forum, my faith in you is so great that I've been feeling sure you were coping with great courage and compassion while taking due care of yourself (I know you truly know you must look after yourself...otherwise how can you be there for your parents & the rest of the family)

    You inspire me and have helped me enormously to try my best to follow your example. Last night I had my 94 year old mother phone from the states just when I was ultra tired & going to where I v much needed to be: bed...she had 2 little stories about character-forming moments when she was 5...as I listened I realised I really could devote 10 minutes to ma...I'd be OK so long as I got to bed within the next hour, which I would...and thought of you with your parents.

    So, please remember: no worries...and no pressure...am just glad you know we're by your side...and am always glad of your updates as & when you're here...our forum is going from strength to strength, thanks to loyal members like you


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    I do draw strength for all of y'all.

    You are welcome to message or email me anytime. There are times it would actually be a blessing to hear from a good friend asking is everything OK!


  • Oh, thanks so much! I will stop hesitating...just please remember: no need for you to feel a duty to reply to anything (ever, promptly)


  • Tiras,

    I'm sorry that your mom is feeling poorly.

    It's terrific that you are doing better! You definitely need to take Laura's comment as a compliment!

    When I have the bright red lupus rash I get on my face, my husband calls me his "blushing bride". I know that he means it in a kind way.

    I continue to pray for you and your loved ones, Tiras.


  • πŸ‘£πŸ‘£πŸ‘£πŸ‘£πŸ‘£πŸ‘£πŸ‘£πŸ‘£πŸ‘£πŸ‘£Lorelei;

    Thank you for your prayers I know they are helping. I should be feeling bad and have anxieties, but, I know it the prayers from all of my friends that are helping me get through this.

    I do know she means well, it just that a guy should not be know by soft and silky legs (well not a normal guy anyway LOL). I will admi she does rub the back of my legs and rear end sometimes until she or I fall asleep. That is a very loving gesture I know!

    Take care and wishing you the best and as always prayers for you too!


  • Tiras,

    You are blessed to have such a caring wife!

    Massage is really helpful for the musculoskeletal pain that some of us have as a symptom of our lupus. I also have fibromyalgia. Getting a massage is terrific relief for that as well.

    Your mentioning it made me laugh because whenever my husband rubs my back, he falls asleep first! I think it's because he works so hard, but maybe rubbing my back makes both of us fall asleep more easily!

    At any rate, a good marriage is a profound blessing when you have a chronic and painful illness like lupus. I'm thankful everyday for my dear husband! He puts up with so much and does so many of the things I should do but can't.

    I hope you keep on feeling better and better, Tiras!


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    You are correct, I will have to admit it feels very good, and relaxing, when she rubs the top of my legs and back side.

    I should also mention That Laura and I celebrate our 35th wedding anniversary last Monday, September the 26th. With all that is going on we did manage to go out and have dinner just the 2 of us.

    And yes our wives and husbands put up with a lot, and go the extra mile for us. They also try to make us more comfortable. Laura has always gone barefoot around the house but, now if we just go to a local store she is barefoot with me. Again that is a loving gesture!


  • You have beautiful legs Tiras I am sure it must be envy behind that comment from Laura --- ha ha.

    Sorry to hear parents are still going through the mill but it sounds like medics are on the case.

    Fingers crossed for you and them that they get the best possible treatment they can get to make everything more comfortable for them.

    Take care all.



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    Thank you for the compliment on my legs.

    Yes, I know she means well. I do take it as a compliment. (As I told Lorielei, a normal guy should not be know as having soft, silky, now add beautiful to that, legs LOL yes, I'm kidding and having fun). She is also a little jealous that I get to go barefoot all the time also. She hates wearing shoes!

    Laura does say she wished she didn't have any body hair, she said showers would not take as long if she didn't have to shave a lot less prep time. But, she doesn't want the medical issues and or medications that make me have no body hair. That I can and do understand.

    Also, thank you for your concern for my parents!

    Wishing you and yours the best!


  • Yes body hair- men are so lucky when it comes to that.Dont have to bother with it if they don't want to and still nothing's out of place.

    Joking apart hope all ok with parents .They are always a concern when they are not well,I have been through the same myself.Iost both of mine within 4 months of each other in 1990.But as long as you can do all that you can to make them comfortable and loved then that is what you do and no regrets.

    They will know that and appreciate that too.

    Thinking of you all.

    Take care.



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    You are correct, for me there is no body hair out of place! (Might as well laugh and joke about it LOL) as long as I don't lose the hair on my head!

    Yes, I spend as much time as I can and do as much as I can for my parents. I know the time I have left with them is short. I also try to take as many photos as possible.


  • Hi Tiras

    Best wishes to you and your parents for coping with all the doctors appointments. Hope your mum gets the help she needs. Glad your skin has settled , hope it continues. All the best Misty.

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    Thank for your word of encouragement. Just a line from y'all helps me through these tough times.


  • It's not an easy time for you Tiras, I do feel for you and hope things settle down soon, it's no fun getting old, your poor parents 😞 but they are very lucky to have you looking out for them and be so caring .

    And oh yes take it as a compliment, us ladies like soft and silky πŸ˜‰πŸ˜†

    All the best to you and your family

    Take care


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    Thank you! You are correct it is not an easy time, not knowing if today will be the last day for either one of my parents😭 I try to do the best I can for them!

    Yes, Laura also says soft and silky is better in many ways? We just celebrated our 35th wedding anniversary last Monday (September 26th) so she has put up wit a lot. I will say she is the perfect example of a wife who took her wedding vows seriously

    To death do we part,

    In sickness and in health

    For better or worse

    For richer or poorer.

    There are not many ladies like her left, and she is the light of my life. I know my lupus issues, pulmonary issues, and malignant hypertension and what I go through is killing her.

    However, I want to be the one having issues. I had rather hurt than to see her in pain! I'll take everything so she doesn't have to. Yes, I LOVE HER THAT MUCH!

    Many thanks for you reply!

    May God richly BLESS YOU!


  • Thank you so much Tiras for your blessing and it's so lovely to hear you say such lovely things about your wife, I too have a wonderful husband and think myself very lucky indeed, come what may we get through it together. We didn't think life would be this way, it's not what we had planned but we never know what is around the corner for us to deal with, it is hard to watch people you love suffer but we do what we can for each other like you are doing for your parents.

    Take care and stay strong.

    Thinking of you and sending many hugs from this side of the pond.


  • Hello Tiras, I have been thinking of you & your family, I hope your poor wee mom gets some relief. I am so glad to hear there is a slight improvement with your lupus rash & blisters. I know that your garden has not received your attention due to your caring loyal commitments, however, there is one very beautiful Rose who cares for you so much, her name is Laura! Peace & Love to all of you Pixiewixie

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    Thank you so much. Yes, the garden is shot. It is gone. I did not have time to keep it up.

    Yes you are correct about Laura. She is wonderful.


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